The science of sleep part 2 - Restless Legs Syn...

Restless Legs Syndrome

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The science of sleep part 2

Sara_2611 profile image
21 Replies

Did anyone see last nights second part of the science of sleep. It was good.. The part about the woman with RLS was quite intetesting

She was wired up & then put in a dark room to sleep & she was observed & then showed her results by one of the doctors there.

I didn't know Amir Khan had changed his career!!! I thought he was a boxer

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Sara_2611 profile image
Sara_2611
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21 Replies
Allyp69 profile image
Allyp69

Yes just watched that bit...disappointed that she can't have any dopamine treatment as is going to have IVF .....wonder why she agreed to go on programme...Is dopamine the answer and what are the side effects?? Sounds like it would be ',strong' medication...but will do more research...

Sara_2611 profile image
Sara_2611 in reply to Allyp69

Hi Allyp69

Yes I agree with you on that one I wondered why too.

I think the best way to find out about Dopamine is to ask your doctor about that. I don't know anything about it Or if anyone else knows anything about it on this site

Madlegs1 profile image
Madlegs1 in reply to Sara_2611

I'm speechless!🤪

in reply to Madlegs1

Me too!

in reply to Sara_2611

Almost every post on here mentions Dopamine meds.

nightdancer profile image
nightdancer in reply to

The most often typed word is Dopamine. :)

senders profile image
senders in reply to Allyp69

Be very careful with the dopamine treatment... it can work well but can also have horrible side effects. I just detoxed off of pramipraxole and it was hell!

nightdancer profile image
nightdancer

Looking at comments, Dopamine meds are still the first line of medications used to treat RLS. It has been the first thing they try since the 70's. Put Dopamine in the search box. :) The Dopamine meds that are constantly used are Mirapex/Pramipexole and Requip/Ropinerole. At night our natural dopamine drops, and that is why dopamine meds help SOME people, and the dose must be kept as low as possible. Cannot stress that enough, for anyone who might not know. There are tons of threads about this. ;) And, no one thing works for everyone, which makes RLS so hard to treat at times.

Madlegs1 profile image
Madlegs1 in reply to nightdancer

Also, Augmentation is the most troubling thing about Dopamine Agonists. This was never mentioned in the programme.

Anyone being offered a DA should be warned about the danger of this.

It is because of Augmentation, that DAs are now not offered as the first line of medication for rls.

My voice has returned.😜

in reply to Madlegs1

They are still offered as the first med to take Madlegs, most doctors here or in the USA are still not aware of augmentation from them, unfortunately. I see that on other RLS group,s people asking about them as they have just been prescribed them. Good you got your voice back, after that little hiccup. :D

marsha2306 profile image
marsha2306 in reply to

I’ll never forget when my Primary Care wanted to prescribe Mirapex and I told her I was worried about augmentation. She brushed it off and said not to worry that she’d get me off of it. So I took it for 2 weeks and decided I really didn’t want to keep taking it. She put me on 300 mg of Gabapentin and abruptly stopped the Mirapex. Boy did I suffer! I didn’t sleep for days and I had only taken it for 2weeks. Yes, you’re right about US practitioners. I was very lucky to eventually be able to see Dr. Early at Hopkins a few months later.

Sara_2611 profile image
Sara_2611 in reply to Madlegs1

I know about it now

Smiler53 profile image
Smiler53

I enjoyed watching this programme, especially seeing how sleep deprivation affected them (know it so well!) Also glad to see the regime of Sleep Hygiene etc helped the insomniac. I'm working on mine.

I appreciate the programme was about sleep in general, but I was very irritated by the way they talk of Dopamine (Ropinerole) like it is a miracle drug for rls and your problem will be solved because it's not and it won't grrr... never mention the problems with augmentation or other options. All that said, at least it was some more air time (of sorts!)

Sara_2611 profile image
Sara_2611 in reply to Smiler53

I enjoyed it myself. I have epilepsy so having a full 8 hours ( or more if poss)

Parminter profile image
Parminter

I am not in the UK so I did not see this programme. But it sounds as though the ignorance just goes on and on and on.

I think that 'air-time', if it is misleading, is probably worse than nothing. Simple solutions?

When will it stop?

Could one or two of you write to the producers to set them straight? Doctors are watching television too, and it will just cement the information they have had from the drug reps.

I wonder if the drug companies fund these things?

Sara_2611 profile image
Sara_2611 in reply to Parminter

Not a clue about that

DicCarlson profile image
DicCarlson

Not in jest - but you Brits could indeed put together a comprehensive and knowledgeable TV or video program about RLS.

in reply to DicCarlson

Hmmm, that would need funding, finding a tv channel that would air it... Someone who knows how to film, direct, produce. How about some of the Americans on here doing it. :)

Sara_2611 profile image
Sara_2611 in reply to

You never know -They may do

Bejwo50 profile image
Bejwo50

What channel was it on? I missed it

in reply to Bejwo50

Channel 5 :)

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