Nearly two years ago my RLS intensified beyond just the horribly annoying need to move my legs while sitting or trying to sleep. Suddenly I was suffering with sensations of pressure, heat, popping, crackling, and shooting pain in my legs and feet. Severe cramps in both legs and feet every morning usually started around 4:00 am with repetitive attacks every 30 minutes. Up until recently I tried topical magnesium gels, electrolytes, additional magnesium, epsom salt baths, leg stretches...none of which brought any relief. Side note: I've been taking clonazepam (klonopin) nearly 30 years for insomnia. Had to keep increasing the mg and that concerned me so over the this past year I've slowly reduced the dose from 4mg nightly down to 1-1/2. Now, for the RLS and severe cramps, I was put on 2 mg of Ropinirole. Can't say that this drug did anything other than give me bad headaches during the night. Doctors prescribed Gabapentin as as additional "cocktail" to ingest. NO WAY! Symptoms were getting worse, totally intolerable, and I was becoming a zombie from sleep deprivation. I kept praying for God to either heal me.....or guide me to something other than drugs that would give me relief. Our faithful, loving, merciful God answered. He led me to Rejuvica Health. They offer two natural supplements that after taking for a couple of weeks, I am almost cramp free AND the supplements have also decreased the the gross RLS symptoms!! Far less shooting pain and sensations that I referred to earlier in this post. Still have the uncontrollable urge to keep moving my legs when dormant....but not while sleeping! Usually happens while watching TV or sitting for a long time. Overall improvement has been nothing less than remarkable....and miraculous! Please give these two supplements a try: Restavin for Advanced RLS Support and Nervestra for Advanced Nerve Support. I simply take a dropper full of each after breakfast, lunch...and before I get into bed. You have NOTHING to lose as Rejuvica offers a money-back guarantee. As for support? The guys at Rejuvica are fantastic. Always willing to listen to my grievances and offer helpful advice. Log onto: rejuvica.com and try the supplements just mentioned. I pray that they will help you wean off the nasty drugs and take the edge off of your suffering!! God bless all of you.....
Thank God! Natural Supplements Making... - Restless Legs Syn...
Thank God! Natural Supplements Making RLS Much More Manageable!
This sounds almost like a sales pitch, this forum is not commercial. Moderators?
It is far from a sales pitch. I suffer from RLS and finally found a natural modality that has taken the edge off. Everyone seems to be posting their suggestions with whatever they feel us RLS victims should try. If what I posted helps ONE person, it was well worth the time it took for me to write it. I am really taken back from your implication.....God bless you anyway and I truly hope that you find the combindation that helps you.
Are you still taking Ropinirole? Or are you now taking no meds at all except these supplements?
I'm glad that the supplements are helping; good for you for finding them! Thanks for posting! 
With the help of taking the natural supplements, I've been able to go from 2mg Ropinirole daily to 1-1/4. I will continue weaning myself off the Ropinirole We are all created different and a lot of what help others on the forum didn't help me. So...I don't know if what is relieving my symptoms will help you....but what do you have to lose. Just give the supplements a week or so before you conclude any judgement. I pray that you will find some relief
Truly a miraculous find! I can't forecast the future so I can only hope that the relief continues. Time will tell but for now, it sure is a blessing to live with less suffering. Thank you for thanking me!
Hope it continues to help with the Ropinirole withdrawal. I had to use opioids and cannabis to get off Ropinirole but if you can manage with just supplements that’s wonderful. I wish you strength.
An interesting post, the standard treatments for RLS are not always successful and not without their consequences so it's refreshing to hear that supplements and perhaps also an element of faith can be of such benefit.
It's just a thought, but if your horrible symptoms should recur, and I hope not, you might consider that they were not due to RLS. I also get cramps sometimes, not related to my RLS and neuropathic symptoms, also not related to my RLS.
This might explain why the RLS treatments didn't relieve your symptoms and why you still have actual RLS symptoms.
I particularly note that Nervestra is advertised as a remedy for neuropathic pain, so if your horrible symptoms do recur, it might be a good idea to have some neurological.investigations.
I was thinking along those lines myself. Wondering if augmentation would cause leg cramps etc. and the reduction of requip lessen symptoms ? Pam
It's very variable I think. I definitely have RLS, I have definitely had augmentation. I also occasionally have cramps. There is nothing in my experience to suggest any association, for me, between RLS, augmentation and cramps.
The circumstances that lead up to cramps and those leading to a RLS episode are identifiably different. I can have cramps without RLS symptoms and vice versa.
I am certain, at least for me, that my cramps have nothing to do with RLS. I do get acute muscle pain with RLS now and again, but this is clearly due to muscle spasm and is qualitatively different from cramps.
Cramps have their own causes, and their own remedies.
As a consequence if someone is to say a remedy relieves their cramps therefore it's good for RLS doesn't convince me. It just means it's good for cramps.
It's similar for other neuropathic symptoms. I also have these, including stabbing or shooting pains. These are due to a known spinal problem, not RLS. Again, if any remedy were to relieve these symptoms, jt couldn't be concluded that the remedy is good for RLS.
(Except for Gabapentin which I take for both nerve pain and RLS).
However, on a pragmatic level, and I tend to be overanalytical, if something relieves the symptoms that you want to relieve, then does it matter? It only matters if you're paying for something that doesn't work.
In some respects perhaps, unfortunate for me, I' m not prepared to pay for stuff without being first convinced that it's going to be worth it.
I understand what you just profoundly posted. I also understand that I probably have a "mix" of problems all contributing to my suffering. The supplements had an umbrella effect on the RLS AND cramps....until last night when I took less Ropininrole....which by the way is prescribed for RLS. Well, the RLS continues to improve but the cramps attacked me all night. So, though you seem to know a LOT more than me...and eloquently explained that cramps and RLS are not truly related, the supplements have without a doubt helped both conditions. Ultimately, my hope is in Christ for complete deliverance from WHATEVER the causes are. For now? I'll stay the course. Thank you for sharing your knowledge ....knowledge is a great medicine in itself
That's great, I wasn't suggesting that you stop taking the supplements. If you have cramps, you need something for the cramps.
If you have RLS, you need something for RLS (not the same thing)
If you have a neuropathy, you need to have it investigated and need something for that too.
It appears that Ropinirole can be used to relieve muscle cramps in people with liver damage. Otherwise Ropinirole isn't used generally for cramp. Cramp doesn't seem to be a side effect of Ropinirole nor a wirhdrawal symptom.
If you reduced your dose of Ropinirole and the cramps were a consequence of this it does suggest that the supplements aren't that effective.
However, it was only one night, and I hope the next is better.
Hopefully, you're aware as a Dopamine Agonist Ropinirole is one of those nasty drugs and it's a good idea to reduce and even stop it. However, hopefully you're also aware that there are withdrawal symptoms.
So please be careful.
Thanks again Manerva....You've been so very helpful. I appreciate you!
God hasn't done much for your rls has he?try Allah perhaps...
The One true God has absolutely healed me of MANY diseases....and brought me back from the grave. Has Allah done that for you? Please my friend, let's love each other no matter who we worship. Isn't that what God and Allah would want? Do not preach to me if it has to do with disunity....or hate.
RLS, as far my experience and many others, are not the pain, it's the urge to move, which could drive one nuts, and especially your spouse. I keep up praying to God for a miracle to happen to the do many suffering from a very irritating illness, which could affect the mood. No one should give up as prayer is our power and so many ppl do suffer from it, that neurologist and researchers are aware of the need of a miracle drug, without the horrible side effects.
I can identify with your sentiment. I did find Pramipexole "miraculous" when I first started it. I know different now!
I have no great hope that there's ever going to be a wonder drug for RLS there's always going to be drugs that are a compromise between therapeutic effectiveness and side effects.
I don't think of RLS as bein a disease that cam be cured, I see it as a constitutional flaw which might only ultimately be corrected by gene therapy. Perhaps a long way off.
RLS is surely a horrid condition that yes, changes our lives dramatically. How refreshing to find that your faith has not been tainted by what seems to be a "curse" that tries to steal our quality of life. Keep praying brother. No matter how insidious the affliction, God is our Greatest Physician....and He doesn't need drugs to heal us. AMEN!
I don't doubt the benefits of having faith. Keep it.
AMEN AND AMEN! God created us and knows our afflictions better than any doctor. He treats us with Mercy, Grace, Love....and Restoration to Healing. I pray this for each and every person in this forum. Amen.
Well how come he hasn't bothered then? really winds me up that you religious folks try and ram your beliefs into absolutely everything,this site isn't about religion that's what church is for, although I think it's great you have your faith to comfort you, religious beliefs are a individual, personal thing and having to plow through that to get to the supposed purpose of these posts,health is frustrating and irratating,I don't want to know about your imaginary man in the sky,and before anyone pipes up about mocking or similar anyone's beliefs,that is my belief which I'm also entitled to,I just try to keep my religious beliefs or lack of them to myself.
My belief, which has nothing to do with any religion, is that the purpose of this site is to give people the opportunity to help and support each other.
I can't see how denigrating someone because of their faith serves that purpose.
You never know, Gene therapy could be very advanced way to go, or it will be interested to match up EEG spikes for ppl with RLS. Some reports, show extra activity in the brain for those enduring RLS. For many others and myself included, they will show up on a EEG (An EEG, or electroencephalogram, is a test that records the electrical signals of the brain),either to be some kind of waves seen by ppl with seizure, God forbid, or heavy activity in brain, not seen with ppl, without seizure or RLS. In no way does it mean that's connected to seizure, all it shows that's real and some form of medication will need to act on the brain, instead of the nerve ending cells. It's no question, that the two famous medications for seizures are wonder drugs, Gabapentin or Lyrica, but the horrible side effects is questionable if it's worth the benefits. Terrible, water retention, with most gaining up to 40 Lb, despite being on a very restricted diet. Gabapentin could make ppl having difficulty with sleep, as it could stimulate the body. The idea is, if even a meditation based on Lyrica could be formed, without the weight gain, bloating and water retention, they might be very successful, at least I hope so. My prayers to all suffering from RLS, don't give up, as together we'll prevail. God bless you
There are perhaps detectable effects of RLS in the brain. I didn't know that there were distinct features of EEGs associated with RLS. However, they are an effect, not a cause. Until a fundamental cause is found, there can be no cure. So far, it seems, RLS arises from genes.
Gene therapy is developing rapidly, but in specific areas and unfortunately RLS doesn't get the same priority as other conditions which are seen as disabling or potentially fatal.
The problem with medicines that manipulate neurotransmitters is that they the neurotransmitters don't have one distinct role in one part of the body. Most also depend on homeostasis which is unbalanced by introducing them artificially.
Great if a drug could be developed which had the benefits of gabapentin without the side effects, but I don't think, because of the above, that this is going to happen.
I'm a miserable sod!
aw youre welcome Good luck with it Im going to stick with what Ive been using
Of course, no "cure", but there are treatments which can be effective. It's just that they are symptomatic treatments not cures. So keep taking them, because without something your RLS will be worse.
Thank you so much for the encouraging comments. No cure...but always grateful for any protocol that offers "relief"....even if it's just a little! Remember my friend, though there is no medical cure, God is able to do the impossible! Blessings!!
I had an attack of it watching a crucial moment of BGT so right in the middle of it I had to get my cream out & put some on
Another "combo" drug - it might have some effectiveness. 24% one star reviews on Amazon amazon.com/Restavin-Restles...
I bought the Restavin for $34 but returned it 4 weeks later because it didn't help a lick. Got an easy, quick, no-hassle refund from Amazon.
It isn't a drug at all, just a mixture of herbs and other "natural" stuff e.g. turmeric.
Supplements certainly helped me cut down from 2mg of Ropinirole to 1-1/4 with far less RLS symptoms and how wonderful to get through nights without the painful cramp attacks in my legs and feet. Last night I tried taking only 1 mg of the Ropinirole and sadly, cramps came back with a vengeance. So now I'm wondering if I should go back up to 1-1/4 Ropinirole or stay the course and pray that my body will adjust to less of this drug....or perhaps take a greater dose of the supplements. Does anyone know if such a low dose of Ropinirole (1-1/4 mg) will cause negative side effects at some point?
I hope someone can answer your question about the Ropinirole.
Funny that you just brought that up. I added CBD from HEMP and took my usual supplements, only gobbled down 1 mg of Ropinirole and wella! No leg cramps and very tolerable RLS symptoms. Maybe I was just graced with a great night and day....if so, I'll take it and be thankful. Thanks for touching base
Awesome!!
Again....whatever is in the supplements, they do take the edge off. The cramping at night seems to be a separate issue that returned when I backed off the Ropinirole last night....which is weird because Ropinirole is indicated for RLS, not cramps. Oh well....it's a journey, that's for sure!
It sure is a journey and it sure is interesting that we are vastly different in what works! I would give these a try myself, but unfortunately will have to pass seeing as it has turmeric in it. Turmeric and I don't get along (it causes me to be in pain so intense that I can't walk without crying out). Since I have the same reaction to Valerian Root, I have deduced that I must be sensitive to herbal anti-inflammatories. I actually still might try it; I would know within a day or so if I have the same bad reaction to it. I will let you know if I decide to try it! It will be a few days yet as I am still on vacation. Can I get it OTC or do I need a prescription?
I bought both the Restavin for RLS) and the Nervestra (Nerve Support) on Amazon. I didn't see a difference with both the RLS and the cramping at night for about a week. Just backed off a little from the Ropinirole and the RLS is still manageable but the leg cramps are back. The forum says that the two conditions are not related so I need to find a solution for the cramps but thankfully, so far the RLS has not become like it was. Yes, life is a journey and we all have the choice as to how we wish to travel. I pray that your path becomes easier
Ok, thanks. The Restavin is the one I'm thinking about trying.
Just a side note, the Restavin seemed to "kick in" when I added the Nervestra but hey, what works for one person may not work for another and vice versa. Remember to give it about a week before you make a judgement. Rejuvica support is second to none. Easy refunds if needed. Let's all make all the pieces fit and continue to try to help each other
Ok, thanks for the "heads-up"! I'll see...
This is horribly written. Even if it is not a "sales pitch", it is just as intellectually bankrupt that it doesn't even matter if it is...
So now I'm being critiqued for the way I write? My gosh, I thought this forum was to "support" each other. Wow!
Please ignore these unnecessary and intolerant comments. I've followed your posts with interest despite not being convinced that these supplements will be of any value for me.
Nor am I convinced that there's a personal deity that intervenes in the lives of individuals. That hasn't however, detracted from my appreciation of your reasons for posting what you have.
Hey guys, can we please respect Write4u? She is here to give and receive support for this horrible syndrome. I for one am appreciative of her help. How she deals with RLS and what she choses to believe/choses to lean on for means of support shouldn't make ANY difference.
Forum rules are located in the right column and apply to EVERYONE! I thank you for listening.
Peace,
I'll second that, I don't think these negative comments about someone who appears to be making some positive contributions is at all in the spirit of this site.
Thank you! It's funny, but I went on "high alert mode" immediately after writing that since I was actually expecting to be "beat" on. There's something wrong when you feel that way...
You want to know what the most frustrating part is, though? It is that a lot of the people who could've responded to Write4U in a more cordial manner have probably already left this thread and therefore won't see what I wrote.
Anyway...enough of that. I'm actually going to log off for the evening. Take care Manerva (and Write4U)
Certainly is something wrong, you shouldn't have to feel that way.
Good night!
Thank you Sails! My intentions never were and never would be to cause more stress than we are all already dealing with. If that is how my comments are being perceived, then it would be best if I said "thank you" to all and I'm sorry that I offended anyone. I have more than 20 other debilitating conditions that only get worse with time....I am desperate to try ANYTHING to help me get through each night and day. I also am a caretaker for my husband and I work two jobs in order for us to pay the bills. Quite overwhelming, to say the least. But we who have the challenges that I see on this forum are strong. We are overcomers...and though we may not always agree, we need each other. There is strength in numbers. Together, with ALL suggestions and EVERY attempt for relief, we will help each other to live with this miserable syndrome. I for one, am thankful for the candor, even the negative. With sleep deprivation and feeling the way we do, I can't blame anyone for being "cranky" ...including ME
you're welcome!
Wow, good for you for doing all that! How admirable, especially in our chronically sleep-deprived state.
We are definitely survivors! I can't make it through a single day without having at least one "meltdown" due to being exhausted. My poor husband is such a sweetie to deal with them, especially since they come on with no warning.
For those taking part in this thread, please be reminded of the forum rules:
healthunlocked.com/rlsuk/po...
Please also be reminded that this is a forum to discuss RLS, not religion.
Thank you.
Not being disrespectful here, but unfortunately religion and politics never go down well on a forum, everyone has their own thoughts on religion, whether they believe or not, and everyone will have their own opinions on politics. It always best to steer away from both of those topics. Having just read the comments on this thread.
Thank you for sharing Elisse2. Will never mention anything "faith" related again.
Very diplomatically put Elisse.
I agree with you about the natural supplements. The restivan did not help me. But the nervestra has been a miracle worker for me. I have successfully weaned myself off of ropinirole. I now take 200 mg of gabapentin, a magnesium capsule and two droppers of nervestra before I go to bed. Previously I was sleeping maybe 30 to 45 minutes A night. Since starting the present regime three nights ago I have slept 8 to 9 hours each night. It has been wonderful!
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