Neurological Alliance 2018/2019 Patient Experience Survey - open to residents of England

[Daragh]

Your chance to influence the way RLS patients are treated...

The Neurological Alliance, the only collective voice for 80 organisations campaigning together to transform outcomes for people with neurological conditions, is seeking responses to its third patient experience survey from people receiving treatment for their neurological condition(s) in England.

This patient experience survey is unique in gathering the views of people with neurological conditions across England about their experience of health and care services across the country and enables the Neurological Alliance to understand what’s good, and what’s poor, in people’s experience of local services.

They plan to publish a report of their findings and recommendations in summer 2019.

If you live in England it is extremely important that you complete this survey. The results will be shared with NHS partners, including their commissioning services so it's a wonderful opportunity to raise the profile of RLS.

myonlinesurvey.co.uk/NA19RLS

[Joolsg]

Thanks for posting. I’ll complete it now. Up with the jumpy legs anyway.

[Kaarina Administrator in reply to Joolsg]

Thank you Jools for completing the survey.

[Pam34]

All done.

[Kaarina Administrator in reply to Pam34]

Thank you Pam and for letting us know.

[Kaarina Administrator in reply to Kaarina]

Bumping up this thread up for those residing in England.

[valleysjumping in reply to Kaarina]

Done. A bit frustrating, but glad of the box at the end where I could say yes, I've spoken to sympathetic neurologists etc, but we need some serious research into the causes, not just prescriptions for drugs which temporarily suppress the symptoms .

[Kaarina Administrator in reply to valleysjumping]

Hi valleysjumping, thank you for letting us know that you have completed the survey even though you found it rather frustrating . Thank you for sharing your point regarding there is a need for serious research into causes. This survey is at least a start and and an opportunity to raise the profile of RLS.

[Kaarina Administrator in reply to Kaarina]

Bumping this thread up.

[Kaarina Administrator]

Thank you, redmaple-5 for letting us know. It is much appreciated.

[Pippins2]

Completed