One of the greatest challenges facing people living with Restless Legs Syndrome (RLS) is poor diagnosis. A 2013 survey of 4,107 people living with RLS found that the average time from onset of the disease to correct diagnosis was 13.6 years, with many patients having to wait up to 20 years and visit numerous doctors before being correctly diagnosed.
The European Brain Council has started a major new project entitled: The Value of Treatment/The Cost of Non-Treatment. RLS was selected as one of the seven brain disorders for the study after the submission of an application by the European Alliance for Restless Legs Syndrome with other conditions selected including Multiple Sclerosis, Schizophrenia, Epilepsy and Parkinson's Disease. For RLS to be included with these other well-known conditions is itself a significant step but now we need to progress the RLS study.
To do so, EARLS needs to raise £15,000 and we are asking our supporters to help. This is the best opportunity we have ever had to raise awareness of RLS but we need your help to do it.
You can donate via:
If you are in the UK, you can also donate via text:
If you you would like to help by text, simply text EARL00 (EARL, zero, zero) and the amount you would like to donate to 70070. There should be a space between the EARL00 and the amount you would like to donate.
For example, if you wanted to donate £10, you'd text:
'EARL00 £10' and send to the number 70070.
If the target is not met, this study is unlikely to go ahead so please help if you can.