I have finally achieved an iron infusion. All the fuss just for one gram of iron in the right place.
I dont expect to know if it works or not for 12 weeks but in the meantime there might be others who would like to try. Whether it helps me or not is not related to the possibiity that it will help others.
I had to visit 4GPs and one sleep specialist with no success until I found a GP who was willing to ring around the specialists to find someone who would be willing to prescribe an iron infusion for RLS and a private hospital who would perform it.
I am in Melbourne and will pass on the Doctor's name if you want.
It cost me AUD500 which is the excess of my private health fund.
I spoke to the doctor on Wednesday last week and had the procedure on Tuesday this week.
I asked the Specialist to aim at about 350 to 500. The whole procedure took from 10:30 arrival to 12:30 finished. This included hanging around afterwards for 30 minutes to make sure nothing exciting happened. The 30 minutes included lunch. The other five patients were apparently having infusions as part of cancer treatment or anemia.
Today I have had some muscle pain and stiff joints. I think these are normal reactions. I had a headache yesterday afternoon so I ate dinner at 3pm and it went away. I was told to drink plenty of water which I did and altogether have no significant side effects.
I had not thought of asking the GP to make inquiries on my behalf to find the specialist. This might have saved me 3 months of RLS.
I think you should ask your GP to find a specialist who understands the requirement for high ferritin for RLS Patients. If the GP won't cooperate jump on a plane to Mel and see my "new best friend" I don't think you would have to get a Melbourne GP to prescribe it, your local should be able to make the arrangements.