What to take

[beady3]

Thank you all for your reply’s, I am on 2mg Nupro patch 100mg Tramodol and 150mg Pregablin, I don’t think they are working , saw doctor last week and he suggested 1mg patch and Sinemet , as you have all told me not to take them please will someone tell me what to ask for next Wednesday , when I read the letters on the forum it’s very difficult as no one seems to have any success , if anyone is ok with what they take please tell me , thank you all

[Pam34]

Hi Beady

Good to get organised before your visit. The more prepared you are the better and the less likely to be fobbed off with something you don’t want.

I thought you were going to follow Jools advise from your last post? Or has something changed since then?

Pam

[Hidden]

Hi Beady, 2mg Neupro is probably not enough. I went on to 3 mg quite soon and have been on it for more than a year. I also take Magnesium, Turmeric and B12 and carefully watch what I eat. I only take 2 co-dydramol if and when needed. Good luck with your GP.

[beady3 in reply to Hidden]

Thank you for your reply, I am trying turmric next week , I do whatch my food as I don’t think sugar helps, it doesn’t make sense how you have a good night and bad and yet you have had the same sort of day , well at least I have a nice doc and we are on first names that helps , let you all know how I get on x

[Pam34 in reply to beady3]

None of this condition makes sense Beady! It keeps us on our toes (literally!) Have Jools and Nightdancers info in front of you when you speak. Take care

[beady3 in reply to Pam34]

Bless you

[Joolsg]

I would repeat my previous advice BUT I would first check that you are not in Augmentation. I’ve read your past posts and replies and you augmented on Ropinirole. That puts you at high risk of augmenting on the patch.

Discuss Augmentation fully with your GP.

[beady3 in reply to Joolsg]

My doctor didn’t know what I was on about when I mentioned augmentation befor, are you sure it wasn’t Requip I had trouble with thanks for thinking of me x

[Joolsg]

Hi Beady,

Requip is Ropinirole hydrochloride - it’s just one of the brand names for it.

Show doctor this video

rls-uk.org/augmentation-reb...

from RLS UK website.

Do not let him give you another dopamine agonist ( pramipexole/ mirapex/ sinemet/ Levodopa).

Tramadol can also cause Augmentation.

Let’s see what he says.

Jools

[beady3 in reply to Joolsg]

My doctor will say I don’t know what to give you, and then I say what ever you advise me on x

[LotteM]

Beady, I second everything Joolsg has said.

I read you are already on tramadol and pregabalin. If indeed you have augmentation again, you may ask your doctor to temporarily increase the dosis of tramadol, while you reduce the neupro patch slooowwwly. Hopefully a higher dose of tramadol will not give you bas side effects. Also ask to get switched to 1mg patches and reduce first by using 1 1/2 patches ( they CAN) be cut into two.

Again, IF you have augmentation, you will have to see how coming off the patch works out. And, once completely off the patch and symptoms have settled a bit, you will have to find out whether you can reduce the tramadol again ( no good to be on a high dose of tramadol for too long). And may you then have to increase the pregabalin - but maybe not. Have your doctor monitor you closely.

Also, it will not harm at all to have another ferritin test now and try to get your ferritin well above 100 ( by taking ironbisglycinate or ferrofumerate every other night - and NOT three time a day, as is the ‘normal’ advice).

When will you see your doctor again? Keep us posted, preferably by replying to this thread.

[beady3]

Thanks will do

[LotteM in reply to beady3]

👍🏻

[Pippins2]

Beady remember i mentioned Targinact when we messaged .Thats a strong painkiller than helps with RLS .It is licensed for RLS .Worth a go .Good luck my friend x