if you’d be willing, could you tell me how bad it was before you took any meds, and how it is currently after finding the regimen that works for you?
i just took a clonidine to try to sleep (it’s 1:30 am) because apparently my legs decided it was a good night to act up. has it ever helped anyone with aches and restlessness? i just tried taking my buspar again this past morning like a lot of you suggested, i really hope the increased aches and pains aren’t from that i have valium too, but i’m afraid of taking it thanks to a not so great experience with xanax.
i also tried getting my eating back to normal, and i did well for a few weeks, but now i’m starting to get scared again. i’m struggling, but i’m in pain while doing it this time :/ also, i’m thinking about trying yoga to help. i’m honestly starting to lose a bit of hope. i thought my RLS was actually just restlessness from anxiety or muscle pain because of my vitamin D deficiency, but tonight i’m dealing with shooting and aching pains in my muscles. it might also be worth mentioning i have the nexplanon birth control implant. the aches and pains could be from that, and the restlessness might still be from anxiety. has anyone had experience with that?
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Well, first of all let me explain my own RLS journey (I'm in Scotland BTW). It started with me waking my wife up in bed with my legs twitching to my legs then waking me up. I was diagnosed with RLS and the neurologist put me on Ropinirole which was gradually increased over a few years to the max of 4mg. However this caused me to fall asleep in front of my computer at work, plus I'd get these tingling sensations in my arms that meant I could not type at the keyboard. So he put me on Pregabalin to help with that. I was also experiencing augmentation with the Ropinirole and so the decision was taken to reduce it to zero when I retired. It took a whole year to ramp down to zero and then he put me on Pramipexole which worked for a while. However I would sleep for maybe 30 - 60 mins before being woken again by my legs jerking, staying up for 30 - 60 mins before going back to bed, etc, etc. Now however I've come off that and am now on 300mg Pregabalin and 200mcg Temgesic (an opoid). The Temgesic now allows me to sleep right through the night for the first time in years (I'm a new man says my wife!).I eat a very well balanced diet but have found that too much salt, too much caffeine and any alcohol trigger my RLS.
Reading between the lines it seems that there's a lot going on in your life and I think you need to find a reasonable base line to work from in order to move forward. For instance, your diet needs to be a well balanced one, and you should also do some moderate exercise e.g. brisk 30 minute walk each day. These will improve your outlook on life and help you tackle the other things in your life.
Life with RLS is not easy and can be painful, depressing, frustrating and very tiring. However bad it may feel, it is not life threatening and there are many many others who are on the same journey as you.
1. what did your RLS feel like before the meds? was it more restlessness, or was it more pain? where did the pain/restlessness manifest itself mostly?
2. does your RLS happen during the day as well? if it does, do you take any of the Temgesic?
3. does the Temgesic help with any of the restlessness (if you do experience any), or does it just numb up any pains you would usually experience and knock you out enough at night to sleep? (congrats on that!! )
and yes, it’s insanely depressing and stressful/anxiety inducing to deal with. i’m still unsure if i have actual RLS. i’m on 300mg of gabapentin, 3 times a day.
and when i say restlessness what i mean (what i experience personally) is the urge to move. it can be walking or pacing, i’ve also rocked when it happened before. it’s more of an anxious restlessness. if i don’t distract myself or move around, it makes me panicky. do you get stressed or anxious when you don’t move?
1. It was not pain rather more twitching/restlessness
2. As I took more Ropinirole then the symptoms started earlier in the day (classic augmentation). Now that I'm not taking any dopamine agonist (Ropinirole or Pramipexole) then I don't have the same symptoms.
3. The Temgesic is the one thing that has stopped the RLS in its tracks and allows me to sleep through the night. Although, having said that, I had an upset stomach last night and my legs started jerking until 1am and then again at 7am. I only take the Temgesic at night (9pm).
I'm on Ropinirole & Gabapentin but my RLS has been worse than ever over the last 2 years & I am about to go onto Opiates. I get it come full on from just after noon until the early hours of the morning. I wake at 4-5AM with about 4 hours sleep. I have taken to an exercise bike for the evenings as I used to have to stand and sway all evening before bed. Sleep is really difficult as after falling asleep almost instantly I wake after 5 minutes deep sleep dreaming too.
Yes it's that alright - augmentation is so bad at the moment & I need the new meds but the GP says he's waiting on instructions which were sent a week ago - usual mis communication. I doubt I'll get it sorted this side of the new year.
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i have valium too, but i’m afraid of taking it thanks to a not so great experience with xanax.
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