We don't need Restless Legs!

[bjwerling04]

Restless legs have been part of my life for many years! I take mirapex and it seems to help a little! But exercise and" keep moving "seems to help some. It amazes me that lots of people do not know what you are talking about! THANKS in advance for anyone's very good input!

[Hidden]

Yes! It’s incredibly maddening, isn’t it?! If I’ve learned anything in my journey with RLS, it is to save my breath when a friend asks what’s wrong.

[RLSgirl in reply to Hidden]

I know the feeling. usually, when I tell people I have RLS they respond either with a dumb look or an “oh no how terrible. What is that?” so I spell it out Restless leg syndrome and then their attitude immediately changes to “no big deal”. Occasionally I’ll run into a mother who had it during pregnancy and she says something like. “oh yeah I had when I was pregnant. That was annoying. I hated it.” And I still think to myself. “you don’t really understand. It was just an annoying temporary thing for you. But for me, it’s a never-ending nerve-racking condition that affects every part of my life and well-being.”

That’s why I really appreciate a place like this group. b/c we all understand what it means to have RLS.

[auntiesioux in reply to RLSgirl]

Right you all are about telling people you have, "restless leg syndrome." Either the reply is nothing or something which lets you know they do not understand or " no big deal." Unless you are talking to someone who has the severity as bad as yours or worse, they do not understand what a robber RLS can be. Since I learned the 'real' name of the disease is Willis-Eikbon Disease (WED) that is the terminology I use when communicating. When I say I have Willis-Eikbon Disease most people, including doctors, do not have a clue and do not ask. That saves me from long repeative conversations. This is just comfort conversation, only makes my mind feel better. not my body. What do you think? Auntie Sioux