Restless legs: Had such a awful nite... - Restless Legs Syn...

Restless Legs Syndrome

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Restless legs

sangha profile image
15 Replies

Had such a awful nite last nite finally fell a sleep at 6 this morning feel so shattered. Medication doctors give don't seem to help why can't they prescribe something that actually works .help

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sangha profile image
sangha
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15 Replies
beady3 profile image
beady3

Sangha like every one with rls that's what it's like ,I don't know what you have taken or are taking,but after years of taking so many different tabs I am now on Tramodol and Pregablin and I have found relief at last ,but if I don't take tabs on time it's soon back maybe you could try those ,let us know how things go x

sangha profile image
sangha in reply to beady3

Have taken tramadol and tried ropinrole waste of time. When Ur self employed its so hard I have enough

beady3 profile image
beady3 in reply to sangha

Well are you taking anything and what else have you had

sangha profile image
sangha

Ropinrole supposed to take one before bed but don't make a difference come to the conclusion just have to live with it

cumoneileen profile image
cumoneileen in reply to sangha

I take 4 ropinrole before bed. One would never work for me.

Hope they can come up with something new soon as there are so many people suffering.

sangha profile image
sangha in reply to cumoneileen

Taking 4 does it actually work for you?

cumoneileen profile image
cumoneileen in reply to sangha

Hi sangha. yes I take 2 at 5pm and 4 before I go to bed. My doctor said the safe limit is 6. They are prescribed for patients suffering with parkinsons.

sangha profile image
sangha in reply to cumoneileen

I don't get it that often but when I do I know about it but think I will have to change meds thanks for your advice

gretakmac profile image
gretakmac

We all need to remember that there are good days and bad days with RLS.

Is your problem mostly at night? Have you had your ferritin level checked? Are you taking other meds that might be aggravating your RLS?

Have you tried Neupro patch. It is a slow release and effective for many.

Yes, to some extent we mostly have to " live with it" but with the right treatment, it should be liveable.

DisneS profile image
DisneS in reply to gretakmac

I have recently been to see a consultant re. Chronic insomnia and his advice was to raise ferritin levels above 70 to treat my restless legs.

sangha profile image
sangha in reply to DisneS

So did that help you

sangha profile image
sangha in reply to gretakmac

What actually works for you

sangha have you looked at other meds you can try. rls-uk.org or rlshelp.org at the treatment page you will find the list of meds available for RLS. The highest dose for Ropinerole is now to take no more than 1mg...2mg at a push. Augmentation is what most people are now complaining about because they are on a high dose of either Ropinerole or Pramipexole. Augmentation is where either of those two meds start to actually make your RLS worse, rather than give relief. So, as the Ropinerole isnt even helping you then you need to change to something else.

sangha profile image
sangha in reply to

I will have a look thank you for that

louise453 profile image
louise453

i suffer restless legs my doctor prescribed gabapentin 300mg most times they help me.

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