Hi Happy 4th of July. I am new to this site and sooo glad to find it! My husband has Parkinsons and it is awful for him. I have been looking at the conversations about the Neupro patch. Does anyone have itching all over and increased urination with it?
The patch helps wifh his walking and talking so I hate to stop it.
I didnt experience either of those symptoms when I was on it and don’t recall hearing of others with them. Itching at the scene of the patch is common. Is there any other med he is on that might be causing these problems?
Happy 4th July to you too.
Hi Tobri sorry to hear of your hubby having PD. If there is a forum for PD's on HealthUnlocked it might be worth looking on there. As RLSers we use a lower dose patch than for some one with PD, so it could be another PD person might have the same side effects your hubby is having. Hope that helps.
Happy 4th! Will probably be better if you talk to there Parkinson's group on here, since as Elisse says, people with RLS take MUCH lower does than the PD patients. The usual complaint in RLS groups is itching from the adhesive on the patch, but not all over. I have never had anyone say that they "itched" all over, but we are all different, and certainly on different does, so could be. Best to ask his doctor, since you say it is helping. I took care of my Dad who had Parkinson's the last year's of his life, so I understand if something is working, it would be very hard to give it up.
The itching all over might be urticaria, which is a pretty common side-effect for a huge range of drugs.
I had urticaria from a common blood pressure med. It is truly unspeakably awful. That would be my version of hell.
Do NOT treat the itching with an antihistamine, whatever you do.
As the others suggest, do join the PD group, but stay in touch with this one too, as there is a good deal of overlap, and often the research that helps one might help the other.
Also, while RLS sufferers do not proceed to PD, PD patients often get RLS.
At what stage of the disease is your husband?
If her husband just has PD which we are taking as so, as no mention of RLS has been stated, then isnt it just us RLSers that taking a antihistamine makes things worse for our RLS. ? Would that not apply to some one with PD. ?
Well, Tobri, we take the same drugs very often. And it is the same part of the brain.
apdaparkinson.org/wp-conten...
parkinsonassociation.org/wp...
If you study these you will see some familiar faces.
So Claritin maybe possible, its one that RLSers seem to be able to use. Just to add i am not suggesting it to be taken, her hubby needs to see his doctor and see if anything else MIGHT be going on which is causing the all over itching or whether it is the patch. Joining the forum for PD on HeathUnlocked would really be helpful to see if others have the same side effects and how they deal with it
Absolutely. You're quite right.
But the itching all over does not seem like the usually localised problems with a patch.
I just mentioned the urticaria because, when I had it, on half my body. I was misdiagnosed four times by four different doctors before a skin specialist nailed it.
She said 'Do you take any illegal drugs?'
I said 'No'
She said 'Then it is something your doctor prescribed, I think it is this one'.
My doctor wanted to deny it, because, I suppose, he did not like to think he was harming me, but he was.
In retrospect, the urticaria was the last shriek from my body, but it had been grumbling at me for years.
Then the soma said 'No, enough of this nonsense, I'm going to punish you until you fix this!'
SO OVER THIS!!!!!
Just found this site tonight
The patch for rls
Anyone using Neupro patch for part of the day?
Augmentation withdrawal and neupro patch 
