Present Situation not to enjoy

[hausbauer]

I am just reviewing my Situation with regards to my rls. Perhaps some of you have an idea for a further way.

After quite some years I stopped pramipexol . dosage was 1x 0,12 mg in the evening. It was not helping any more and brought Augmentation.

So I switched with help of my Neurologist to Pregabalin, for a few weeks taking both of them until I was rid of the prami.

Then pregabaline alone, first 50, then 75, 100,125 and now back again to 100. That is where I am now. I reduced the Pregaba because of its side effects, feeeling muted, down, seeing only problems rather than spring outside. Further I do not want to live with constipation and ugly winds, especially when travelling, Pregaba does not help, much, only the Augmentation stopped, Which is not too bad but not enough,.I do not want to increase as all side effects will of course go up.

So I thought I will ask my doctor for the Neupro Pad, very much hoping that my skin will tolerate it. I will start with 1 mg. But since we are away on Holidays to Sardinia for a week, I will wait with the start and sticking to useless Pregabalin . Just now I have taken a sleeping pill (Zoldem=Ambien 5 mg) to NO USE. No sleep at all. Last week I tried 10 mg Zoldem and was rearranging the kitchen instead of sleeping. It seems that in my case sleeping pills do not work but increase the restlessness.

Dod you think that it is too early to take another Dopaminagonist (Neupro instead of Prami). I stopped 6 months ago.

Thank you for reading this and I would welcome what you think of this, .

By the way Ferritin is 129.

Christa

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[involuntarydancer]

Hi Christa, i came off pramipexole due to augmentation and my consultant prescribed the neupro patch. I started the patch about 6 months after finishing pramipexole. My plan was to alternate between the patch (for about 2 or 3 months) and Kratom for 2 or 3 months. It worked well at first but ultimately I noticed that I was starting to augment on the neupro within 8 weeks. I also found my impulse control problems returning so I stopped using it. I never want to be augmented on a dopamine agonist again.

I wonder if you added in a low dose of an opioid such as tramadol would that help. I don’t get relief from pregabalin on it’s own but I do notice that if I am using another drug to treat my Rls and I am also on pregabalin, the Rls gets worse as I reduce the pregabalin so it definitely seems to have a role to play.

Sleeping pills are no help against RLS symptoms and I found they made everything worse because the legs would stop me from sleeping but I couldn’t do anything else because I was so dopey from the sleeping pills. I would stop the ambien etc until you get a system that gets the legs under control.

[hausbauer in reply to involuntarydancer]

Thank you for your comment. I will talk to my doctor with regard to Neupro.

RLS on its own is bad enough, but with not working sleeping pills it seems three times as horrible. You are right, I will stop right away.

[Madlegs1]

Just regarding the sleeping pills - I agree that they are not any help with raging rls. But ordinarily , one must take them and go to bed at once , within 15 mins they work. If not then one just stays awake. This is from my own experience and others using them.

ID has given good advice.

As usual- are you watching for all the possible triggers? Read elsewhere on this site. Diet can be very important.

All the best.

[mantel]

I would try adding Tramadol or Oxy Contin to your Pregabelin it take 100mg of Tramadol and the same of Pregabelin. Pregabelin rarely works on its own xx

[hausbauer in reply to mantel]

Thank you madlegs and mantel for your advice. I know I should watch the triggers more. Up to now I know that my rls does not like pork, smoked fish, soya, and all that contains too much histamine. But I will go deeper into this matter. Sometimes I am just too lazy and tired to do much about it. But I am sure that many of you feel sometimes the same. And with regard to Tramadol I am afraid that it will increase constipation. So I am hesitating still. But thank you anyway.