Those of you who have the patience to read my sometimes rambling posts will know that I was taking 6mg of Ropinirole a day and had been taking it for quite some time with Neupro patches before that anyway I finally went private to see a terrific Doctor Jose Thomas at the Spire Hospital in Cardiff who prescribed Pregabalin instead of the Ropinirole that I was suffering terribly with Augmentation and therefore had been slowly withdrawing from since 23 October 2022. I think I’ve got my GP on board now as he is following Doctor Jose Thomas’s recommendations re change of medication and referral to a sleep clinic yet to receive an appointment.
I got down to half a milligram of Ropinirole and decided to stop taking it and just go cold turkey that was 5 days ago and the first 3 days / nights were horrendous with sleep deprivation at a level whereby I couldn’t spell my name.. Anyway I got through the worst of it by taking Solpadeine MAX not overdosing but keeping within reasonable limits and very long hot showers, can’t sit in a Bath, have to be on my feet. My GP prescribed 25mg Prograbalin and to increase by a further 25mg every 7 days up to 100 mg when I’m to see him again for a review. I know that the usual starting dose for Prograbaline is 75mg and as it takes about 3 weeks for it to start to work I took it upon myself to increase my dosage every couple of days and am now on 100mg and as of last night I felt as if things were improving. I have a follow up appointment with my GP on Monday 13th November, ( glad it wasn’t Friday the 13th🤣) so will let you know how I get on and what he says about increasing dosage so quickly. I will also be interested to hear any reaction from the practice to the file I put together on RLS and Augmentation. That feedback could be very telling.
my very best wishes to you all
HipHop1972