Anyone with 100% RLS free

[Dasymoo]

I’m interested in what has worked for people.

I know that what works for one doesn’t work for others.

[involuntarydancer]

If I take 200mg dipyridamole (persantin) and just under half of a 0.088 tablet of mirapexin (pramipexole), I get no symptoms and a fantastic refreshing sleep. I also feel great during the daytime, alert and normal. BUT I have only been on this system for about two months and there is no telling how long it will work for.

Also I choose to take slightly less mirapexin than I require for total relief because there is a strong body of opinion that it is safer in the long term to get slightly less than 100% relief - if your system affords 100% relief, rls seems to somehow guess and ramps up the symptoms. If you keep it at about 90% relief, the system works for longer. I also do without mirapexin for two nights a week (I use kratom if symptoms get really bad) in the hope of avoiding augmentation - I augmented very badly on mirapexin previously. I am not sanguine about taking that drug.

In the interests of full disclosure I also take a gradually reducing dose of pregabalin - currently 75mg per night. This is a residuary drug - I don't think it is helping with symptoms and I am following a very gradual elimination programme. I take 0.5mg ldn to help the pregabalin withdrawals. I look forward to a time when I am finished with pregabalin and can discontinue ldn.

Many systems afford relief initially only to prove not to stand the test of time. Or they afford relief from rls but leave you washed out and substantially under par and/or with bad side effects.

In my never-ending quest to reduce my reliance on pharmaceutical meds, I plan to experiment with a vegan diet next. I am also thinking about getting an intra venous iron transfusion.

There are no easy answers with rls.

[Madlegs1]

I have virtually 100% relief on 25mg of opiate pd. (20mg oxycontin and 5mg oxycodone) ---

The only time I get any twinge of rls is when I take a trigger food- rising agent artificial sweetener and msg etc -- all of which I tend to avoid as a matter of course. Alcohol is completely out.

I could do with taking slightly less opiate but they don't make a small enough dose.

The only downside may be a slowing down - not keeping fit-- but I don't know if that's down to the opiates or old age.😢

[Dasymoo]

Interesting

You take about 3 different meds for RLS

I go to hospital 4th may. Hopefully I will be off my meds

I am taking 75mg pregablin at night

But trying to reduce it to 3 or 4 times a week

I take tramadol 2 three times a day.

I have asked for the iron injection

So i am hoping to get this next month

Tramadol and iron cause constapation and i have got chonic constipation I end up hospitalised

I’m so tired and can’t concentrate on my everyday life.

I’m going to look up what meds you take.

It’s good to hear that you have it under control x

[involuntarydancer]

Dasymoo, be cautious about stopping pregabalin intermittently unless this is under the advice of your GP. 75mg is not a very high dose but if your body is used to it, it could get quite traumatised if you just discontinue the whole amount even if only for a day or two. It might be better to reduce the overall amount by a small amount every few days to bring the dose down. The system I am following is to reduce by 10% every 10 days or so. I do this by dissolving the tablets in water - measuring the water with a dropper I got from the chemist - I dissolve 100mg in 10ml of water so that I can fine tune the dose. I found that when I reduced pregabalin too rapidly I got horrendous symptoms of restlessness and misery. They went on for weeks. Would not like anyone to go through it needlessly.

[jimmcar]

I went onto a 100% raw food diet and it cured my RLS completely for about 1 1/2 years, then it slowly started coming back so I went back onto Sinemet. Now I'm beginning to think that it was the anti-inflammatory properties of the raw food diet, not the fact that it was all raw. I'm going to try a vegan diet soon, now that I have been hearing such good things on this website.

The anti-inflammatory program promoted on rlcure.com was great. I don't remember if it was a 100% cure or not but I remember it as being very helpful. But, after a time, I was so tired of taking 15 different kinds of pills 4 times a day that I just couldn't keep it up. At the time, one pill of Sinemet was enough to give me a good nights sleep and it just seemed easier.

Kratom with cannabis (edibles are best) works wonders for me but I feel groggy the next morning so I only use it if I'm having a really bad night.

Lately, I have been having very good luck with a teaspoon of mucuna pruriens powder (mucuna is a bean with very high levels of levadopa) and 25 mg of Sinemet and one drop of Deprenyl every other night. It goes in cycles and I might lose a couple of hours sleep a few nights in a row every couple of weeks - but, in general, I sleep moderately well most nights.

[Bganim1947]

I seem to be 100% RLS free now with a dosage regimen of Lyrica and Tramadol. It has been a difficult nearly year-long process finding the right dosage and combination for me after a year of severe augmentation on Ropinerole and my 6 or more weeks of withdrawal from it when I finally went cold turkey. I'd be happy to share my process once I know what your intentions are for using or knowing it.

[Dasymoo in reply to Bganim1947]

Hi Bganim1947

My intention for knowing is to see if there is something else I could try as I thought I had tried everything.

You are so alone when you have RLS no one understands what it is like.

I get my son to punch my arm and leg till it’s very sore

To take away the rls.

I have tried acupuncture and cupping. And lots of vitamins

With hardly any success.

If you have tried something I haven’t I would certainly give it s try.

Thank you for answering.

[Bganim1947]

In the HealthUnlocked website: RLS forum that you are in, check my recent (last week) response about Lyrica and Tramadol. It tells you everything you need to know. It’s under my post name Bganim1947. Of you can’t find it let me know. You can also check all my last year post that should still be available through Search to read about the trials and errors I went through and all the help the members of this forum gave me along the way-/they pulled up out of hell.