I have posted and many wonderful people here have been very helpful. Today is my 30 day of trying to get off Ropinerole and I am completely dis functional ... I have tried everything I know to do and I am a total wreck!!
I went to my doctor on Tuesday and this is Sunday ... I tried to explain to her what is going on and all she wanted to do was raise my mg of Ropinerole ... When I convinced her that was not going to work (I have taken Ropinerole in different mg for 15+years) ... She reluctantly gave me gabapentin 100mg and said "take one 100mg gabapentin before bed and you can take it along with Ropinerole with no problem"...WRONG!!! She refused to give me Tramadol or codeine or anything like that. The gabapentin 100mg did nothing but make me very dizzy and I jerked horrible throughout my entire body.
I had weaned myself down to 1/2 of 0.5mg of Ropinerole about one time a day...now in the last 2-3 days I have been so bad that I am still cutting the 0.5mg Ropinerole pills in half but I am taking them 3-4 times a day and I have not taken gabapentin again after the first pill.
It's been the weekend so I have not been able to reach anyone if I could I actually don't even know where to go or who to call at this point????
I cannot go on like this I cannot function I can't sleep and I don't know what to do next???
I have Clonazapam 1mg that I have been reluctantly taking because I had withdrawal from this drug years ago and it was a nightmare too.
I have tried everything I know to try from Epsom salts baths to magnet mattress pad to iron (slow FE) recommended by the GP Doctor and as many vitamins as I can possibly swallow ... I am supposed to have blood work done the first week of March which is only days away but I don't know what that is going to help either??
I would love to be able to do something that is natural and get away from prescription drugs because everything seems to have so many side effects and nothing lasts long...I feel like a hypochondriac and to tell you the truth I am embarrassed to go around people because they have no idea what I am going through...even the doctors!! I have been to neurologist and they just want to give pills that I have already tried over the lifetime of this horrible RLS and they basically act like it is no big deal either.
I am 68 years old I weigh about 135 pounds and I am a female...I have suffered with this as far back as I can remember.
Ropinerole has had a horrible impact on my life too...I have spent thousands of dollars...I just went through divorce last year...I am miserable...ashamed and embarrassed!!
Thank every one of you here for listening and I do feel that you are the only people that understand at all what I am going through!!