Tramodol

[beady3]

Has anyone come of Tramodol if did you have any side effects please tell me what they were , I am going to see my doc next week and am going to ask to come of them , I take 100mg a day, I am on my own now so quite scared, I will be going to stay with my daughter mid Feb and would start while I was with her, thank you once again xx

[Joolsg]

Hi Bea

Hi Beady,

Have you been on them for a long time? Why do you want to come off them? Is it because they are no longer working?

I was on tramadol for around 3 months after withdrawal from ropinirole and I didn't have any side effects stopping suddenly but I think that's because I was on it for a short time and I was on gabapentin as well.

If they are still working I wouldn't stop.

If they have stopped working, have a chat with your doctor so that he/she can monitor withdrawal and prescribe something else to start taking ( like pregabalin).

Hope whatever you decide to do works out well.

[Madlegs1 in reply to Joolsg]

Agree totally with Jools- why do you want to go off them and what is your alternative. Tramadol may take a few months to get all the little annoyances out of the way- but it is one of the best remedies for rls.

Think very carefully before coming off-- where do you go next?????

Cheers.

[beady3 in reply to Madlegs1]

Thank you both for answering my question, I am going to the doc next Friday, I think it is either the Nupro patch or the Tramodol that is giving me head shakes it’s not when I am waking about it’s when I am sat in the chair or lay in bed, but it’s not nice, maybe it’s neither I don’t know, I am already on Pregablin , last week lots of the group were saying I took to many meds , I think it’s about 2 yrs I have been on them , same as the patch , I really do appreciate your answers thank you xx

[Hidden in reply to beady3]

I'd vote for the Neupro patch - since I've stopped my thinking is clearer, I have less strange feelings in my head and don't fall asleep mid sentence any more.

I was on 300mg for a couple of years but had to come off cold turkey as I ended up in hospital with a bad infection and couldn't take any drugs. It was strange as I felt floaty and spacey and apart from the pain and discomfort of my back and the RLS it was quite pleasant in a strange way.

That said if you are stopping have a proper reducing regime and as the others say make sure you have something to make up the loss of the Tramadol, (I still say quit the Neupro and keep the Tramadol).

[beady3 in reply to Hidden]

Thanks Raffs , I know I am going to see the doc but they ask you what you think not the other way around, Have you got that right 300mg a day ?

[Hidden in reply to beady3]

Yeah it was 150mg twice daily of the extended release preparation. I think 400mg is the max

[LotteM in reply to Hidden]

Raffs, does the 300 mg refer to rhe neupro??? As you started your reply with that one. I suspect the 300mg was about the tramadol?

And we both think, if I am right, that beady should first focus on getting rid of the neupro.

[Hidden in reply to LotteM]

Yeah the 300 was the Tramadol the Neupro was 2mg, I think if I had 300mg of it my head would explode!

[LotteM in reply to beady3]

Beady, I don’t want to sound unkind, but you have started a post about exactly the same issue 4 months ago already - and indeed got similar answers. As Raffs is saying below/above, and as others and I said back then, it is probably the neupro patch. Although the chance with neupro is smaller, it is a dopamine agonist like ropinirole and pramipexole, and you should always suspect augmentation with changes in symptoms, like yours.

Talk to your doctor about it, bring the augmentation info from the rls-uk.org website. And know that you CAN cut the patch to allow smaller steps when you start reducing. It will help a lot if the doctor prescribes (2x) 1 mg neupro patches to start reducing from.

[beady3 in reply to LotteM]

What I wanted to know is is it the tramodol or the patch giving me the head shakes or is it another problem

[LotteM in reply to beady3]

“Head shakes” like rls-feeling in your head? If so, that sounds really awful.

I would suspect the neupro, but only trial-and-result will tell.

[martino]

I stopped taking Tramulief as I was not sure how much good it was doing. Big mistake! My legs were terrible and at 1.30am I took another. Half an hour later my legs calmed and I could sleep!

[punked]

I've been taking tramadol for about 15 years for chronic back pain after four spinal fusions. The fusions straightened me out and lessened the pain significantly, now, it's the 30 some 3-inch screws and the failed lumbar fusion that cause pain. I did go off the tramadol for a few months and did experience some anxiety but nothing extreme. I just wanted to see how much they were helping. Now that tramadol has been deemed an opioid in the U.S., they are harder to get and when you do get them, you don't get many (60/month) in my case. On bad days, I take three or four, which leaves me well short before I can get a refill. I substitute ibuprofen which isn't nearly as effective.

[John_naylor]

After 2 years Tramadol (100mg) stopped working for me and so I am on Gabapentin (1600mg) and RLS is just tolerable. I had no withdrawal problems at all, just RLS was really bad for a month whilst making the gradual changeover. Perhaps it was too low a dose to become addictive or perhaps RLS sufferers are less likely to become addicted? Tramadol side effects for me were itchy skin (which eased after a few months) and falling asleep in an afternoon/ evening. Hope I can resume taking Tramadol soon and get a full nights sleep again.

[LotteM in reply to John_naylor]

Hi John, so you are now doing so-so with the gabapentin? Are reduced but still present rls-symptoms keeping you awake at night?

I have a question about your time on tramadol. Did you fall asleep in the afternoon only, or were you in fact tired, or something akin to that during the rest of the day as well? Because that is what I have at present, since about 5 days after I increased tramadol from 50 to 100g. And it is more or less preventing me from work as I need to be concentrated and focused. I didn’t have that, or not obviously, while on 50mg. Reducing to 50+37,5mg tramadol hasn’t helped. Nor with the restlessless ithe tramadol is giving me at night. So now I think about reducing to the 50mg only again and just walk the remaining rls out again. 😒. As I am also on gabapentin (300 mg), I am going to be a bit more persistent and will slowly increase. How did you notice the gaba started working for you??? And do you take in the evening only, or several doses, earlier and later? Not that what works for you will surely work for me, but one never knows... I’d appreciate more specified info from you. Have already looked at your previous posts and replies. Lotte

[John_naylor]

Hi Lotte

I take 800mg at 14.00hrs and 800mg at 22.00hrs and I don’t get any RLS until in bed and only get it in my legs. Previously it was in my arms and hands as well and often in an afternoon and evening if I rested. This may have been Tramadol Augmentation or just my natural state with Tramadol Tolerance. Who knows?

Currently, I get RLS 3 times a night in bed and immediately get up and watch TV or do jobs around the house for half an hour and go back to bed. Some nights are better, some much worse. I can take 50mg Tramadol if I’m desperate and get a good night usually but need to stay off for some weeks if I am to start again without going into Tolerance. I used to take 100mg Tramadol at 22.00 and that would make me alert and unable to sleep but kept RLS at bay. Unfortunately, the cycle seemed to be that I would fall asleep if I rested late afternoon or after my meal at 19.00. It was peculiar in that I sometimes didn’t know I’d been to sleep and it came upon me in an instant. If I was driving a distance in an evening I would take Tramadol as it made me alert and avoided the sleepy state. I don’t believe it was tiredness, purely the Tramadol cycle. My GP prescribed 3x300mg Gaba but I increased it in desperation and he supported me with the increase and going to twice a day. I think there is room to change the timing of my doses but don’t want to disturb it at the moment. Will probably try to reduce Gaba and maintain a low dose of Gaba and Tramadol when I can resume.

Hope that this helps.

Good luck

John

[beady3]

Well John this just a short not , I think I take a lot but 800, twice a day my god it’s a wonder you can get on with life , I take 100, a day tramodol and 150 mg Pregablin ,good luck to you x