RLS worsening on Neupro patch

[RLSBOGEY]

Suffering with RLS. Tried Mirapex, felt like I was beaten with a club. Ropinrole was better not as much pain but augmented. Now on Neupro patch, not sleeping well on 2mg/24hr. Many nights 3 or 4 hrs of poor sleep. What else can help? Anyone know?

[Hidden]

when you augment on one dopamine med then you will augment by changing to another dopamine med. So, thats what happening to you. You need to get off the patch and not take anymore dopamine meds. Some people can go back to taking them after being off them for 6-12 months. You now need to try a different class of meds. rls-uk.org will have a list of other options.

[RLSBOGEY in reply to Hidden]

Thank you Elisse. Unfortunately I live in the US where only four meds are approved for RLS treatment. I have tried all four,with the best result for nighttime sleep, using 1.0 mg of ropinirole every evening. I have tried many home remedies and vitamin supplements for temporary relief. My GP is hesitant but I would like to try methadone, which I have read works for some people. I have tried cannibas and is helpful yet temporary and does not let me sleep. I take an iron supplement twice daily and may try the magnesium. Raffs is correct, I stay away from antihistamines, they are a problem with RLS. I better stop rambling, thanks for responding.

[Hidden in reply to RLSBOGEY]

Methadone is being used more and more in the USA for RLS. Its not one that would ever get used here in the UK. have you tried any meds like Tramadol. ? Also works well for alot of RLSers. I hope you get relief soon.

[RLSBOGEY in reply to Hidden]

Dr is very hesitant to prescribe any type of opiate.

[Hidden]

I had the same problem wiht the Neupro patch - augmentation is a real b1tch.

As Elisse said you need to change meds. If you are in the UK, Targinact is very good and licensed for RLS. You'll find plenty of info on drug treatments:

rls-uk.org

&

rlshelp.org

Hot showers/baths along with stretching can help as can cannabis and kratom if you can access them. Be worth checking to see if any other drugs you are taking could be making things worse - antihistamines and antidepressants are notorious culprits.

Good luck.

[Hidden]

Hi Rlsbogey. I hear what Elisse has to say about augmentation and I am sure she is right. However, I increased my Neupropatch dose to 3mg and take 0.5 mg of Clonazipam at night. If I still have a problem after that, I take 2 co-codamol (8/500), which helps to give me a good night's sleep. For the moment I am OK on this, but of course am dreading augmentation in the future. Good luck!

[RLSBOGEY in reply to Hidden]

Thanks for the info, my Dr is very hesitant to prescribe any type of opiate. I would like to try one to get more sleep.

[Hidden in reply to RLSBOGEY]

Hi there,

My Clonazipam prescription came from my neurologist. You can get co-codamol (8/500) over the counter in the UK.