Amazing: They can put a man on the moon... - Restless Legs Syn...

Restless Legs Syndrome

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Amazing

Jude1000 profile image
8 Replies

They can put a man on the moon but they cannot fix RLS!!!

Trying not to move certainly makes it worse, plus anxiety.

I don't think there is a 1 fix remedy, and I don't think one thing necessarily helps everyone. Seems to be a lot of trial and error. Its hereditary, my Mum had it, my sister has it and yahoo I have it too.

Hope you're all coping best you can. :-)

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Jude1000 profile image
Jude1000
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8 Replies
Neil46 profile image
Neil46

Putting a man on the moon, yes, they're doing the easier things first. As you say, there is no cure and plenty of variety in responses to every treatment or combinations of treatments. All we can do is try to get some relief from the symptoms and as much sleep as we can squeeze out of the night (and some of the day as well). Most of us get strong walking legs, so it's not all bad :)

Best Wishes

Neil

Jude1000 profile image
Jude1000 in reply toNeil46

Great reply Neil. Yes... as you say things could be way worse. Have a great day and hope for you a restFUL sleep. :-)

Pluto46 profile image
Pluto46

Agree completely - when you think of it there's a lot of stuff we as humans have achieved, but lots of stuff we haven't - and may never. But I agree that rls is a compendium of conditions, probably of causes as well. It is called a syndrome after all, and given all the various remedies which people say are of benefit to them, there's obviously no single remedy. It's probably more complicated divining a cure (or collection of cures) than getting people to the moon.

One of the things one needs to ask is where the responsibility for finding cures and remedies sits. As most countries are winding down their public health services, and relying on the private market more and more, it's not certain pressure groups can expect much joy from the private sector. Lobbying governments is one thing, persuading corporations to do research on a problem most people haven't heard of and couldn't care less about is another kettle of fish entirely.

One way would be to fund research oneself, like heart and cancer organisations do. But they're high profile operations, and rls sufferers are scattered here and there and don't have a global or unifying organisational presence. Philanthropists like Bill Gates and Richard Branson aren't going to fund a non-existent rls research bid without a central funding channel they feel they can trust.

Anyway, that's my two penny worth.

Chris

Fredanderson profile image
Fredanderson in reply toPluto46

There are a lot more people who have RLS, than you know. I urge all of you to come out,so that we can get some research done.

Jude1000 profile image
Jude1000

Very comprehensive Chris. I have colitis also and have been going to the Hospital for that condition for several years now. I have tried countless drugs, diets and therapy but really, its just the same as RLS - there are no real answers. Have found the best thing to do is to ensure I have my bloods right and ditch most of the drugs - unless they're natural. Funding will always be an issue. I am lucky to be in the Hospital system here. I have regular colonoscopies and gastroscopies etc without a cost. I am grateful for that. Some funding would be excellent for rls. We deserve it.

Fredanderson profile image
Fredanderson

Tramadol 50mg 2pills 3 times a day.

I took Co Q 10, 800 mg in am. It worked for me.

Nannarls profile image
Nannarls

My daughter insisted if I could force myself to remain still for 8 minutes I would go to sleep. I don't know where she got this idea from but it was like torture after a few minutes and I couldn't get to the 8 minute finish line either. 2 of my sisters and a brother have RLS to a much lesser degree than I do. Heat on the legs can be a trigger too, even in winter my legs must be cold. Good luck with ur quest.

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