It is amazing, this RLS

[Clarence1936]

I have had RLS for about 40 years. I have been to at least a dozen doctors. They all think they have the answer. The honest ones will tell you that they don't. They have never cured even one of their many patients.

I read all the drugs that suffers have discovered but in due time they switch because they have heard about another one and the one they are using doesn't work anymore.

It is an endless road.

I was told by my doctor to take two .50mg of pramipoxle per night. I have cut it down to 1/2 of a .50mg tablet and it seems to be working so far.

I never know it may last for a while and it may not work tonight.

[Madlegs1]

I appreciate you have posted within the last few hours. So I'm not sure what's going on for you?

To answer this post , briefly.

Your doctor is incompetent.

You should have been started on 0.088 mg of Pramipexol, for 3 days, before onset of symptoms.

Raising that by another 0.088 tablet if no relief with the first one.

Generally, total relief will be achieved with the second dose.

The maximum dose is 0.25 mg. NEVER go higher for RLS.

For many people this is an adequate solution to their rls problem, assuming they have sorted any iron deficiency, medication triggers, and food / liquid triggers.

Some people may experience increased symptoms after some time, and should look for another medication. They should not increase the Pramipexol, or be moved to any other dopamine agonist medications.

Good luck.

[Jules1953 in reply to Madlegs1]

Hello your comment The maximum dose is 0.25 mg. NEVER go higher for RLS.

I had read that the maximum recommended daily dosage was 0.5mg of Pramipexole. Has this changed. I slowly weaned off Pramipexole 2 years ago now. I spent 1.5years reducing slowly from 3.00mg. It horrifies me to know how over prescribed I was. When ever I told my doctor that it was no longer controlling my RLS, the response was to increase my dosage. Unfortunately at the time I was not aware of augmentation. Kind regards Julie from Western Australia

[Madlegs1 in reply to Jules1953]

You are possibly correct!I'm just going by what I have seen on Dr Buchfurer site, where he recommends this limit.

I'm ok with that !😝

I'm not sure if the FDA have a recommendation for Pramipexol limit for RLS.

Anyway-- it's sure to be way out of date from our own experience on this site!!🙄

Thanks for the comment.

We miss Manerva!!!😥

[LotteM in reply to Madlegs1]

I checked the updated guidelines in the Mayo Clinic Proceedings. In the table of DAs is says max 0.5mg for pramipexole.

[Madlegs1 in reply to LotteM]

Fair enough.

👍

[SueJohnson]

I agree 100% with Madlegs1. I remember you were going to talk to your doctor about going back on gabapentin as you had taken it in the past. What happened to that?

[Eryl]

That's because they all treat the symptoms and not the cause which I believe to be inflamed nerves. I have had complete relief by changing my diet to avoid inflammatory foods. As it happens I have just attended a family gathering where I broke my diet to fit in and the RLS returned within two days. all it took was a few slices of bread which i would normally not touch. I normally avoid any food made with added sugar (even natural sugars), any food made with wheat flour, any processed food containing erfined starch (i.e. almost all processed food) and keep refined seed oils to a minimum.

[Hidden]

Totally agree. The same very experience for myself.

[CookiePooki]

If there is a silver lining its not full blown parkinsons...I have tremendous empathy for all with Parkinson's and know it's different.