About four weeks ago I read on here a post about gentle iron. After a really bad session of RLS I thought it was worth a try. I also went on a link to an article about the anemic brain. I bought some and waited for my legs to start . Sure enough that night they started, just as a film was getting interesting. I took a iron tablet and about 30 minutes later watched the rest of the film. I have since taken one tablet every night and have not suffered RLS. Just to satisfy any doubt I have since knocked the iron off and RLS returned the next day. So back on the iron now. The other amazing fact is my daughter has dystonia and also tried the iron , after learning about the anemic brain theory . She is so much better and has now come off her prescription drugs. I can't thank this site enough, and thank you to all the people who take the time to share there information.

20 Replies

  • I'm trying gentle Iron too. I take it in the evening and am on my second week of it but yet to notice any change :(

    I'm delighted its working for you, long may it last.

  • Thats good to hear! ! Unfortunately it didn't work for me but definitely worth a go x

  • It never worked for me at all, but we are all different in what helps us and what doesn't, so am very glad for you! We have to do what we have to do to get any sleep. ;)

  • Hi Gills. There's so much about iron I wish I could teach you so you can carry on helping people. The iron is unlikely to help people with a raging infection such as Lymes disease. Every organism loves and needs iron. So mother nature, in her infinite wisdom, gave our bodies the ability to STOP the absorption of iron from the GI tract in the face of infection. Our bodies will release a hormone from the liver called hepcidin. Hepcidin is the iron gatekeeper. I have a feeling that the iron is not helping Raffs because he has Lymes Disease. Also, as I mentioned to you, when I raised my melatonin intake from 1mg to 3mg I had to up my iron intake to two pills. The people on this post who said that the iron did nothing for them are on theraputic doses of antidepressants so I have no doubt that the iron failed them. There is a point of no return. Had I taken 10mg of melatonin, which many people do, I don't know that any amount of iron would work. Plus, the iron, as you know, has to be taken during an attack on an empty stomach and it has to be bisglycinate. I know that these members took a different form of iron and followed their doctor's instructions as to how to take which I doubt was in the above fashion. I could go on and on about the iron and how and why it works. You can put "some answers" into the above search box and my original post about iron should come up if it hasn't been deleted.

  • You do not know, or you have forgotten? I DID take Bisglycinate religiously and told you many times, Glycinate. No wonder I could not find you before, you have changed your name yet again, for about the 7th time. Listen to what I have told you. I used the very iron that you are obsessed with, and it did not help me.

  • Nightdancer, then apparently iron deficiency is not your problem or the cause of your RL attacks. The Relaxis people tell me that my RL attacks start with the thalamus gland "notifying" my legs that they are not active enough, so they send their jolt of "RL electricity" to try to move me. And it usually does move me...right out of bed and walking the floor. But I have now found a natural L Dopa that is not a prescription drug, (I don't like drugs--there always seems to be a kickback from them, and their effectiveness eventually wears off.) I am taking Mucuna Pruriens which is a natural bean used in India to control PD and RLS. I encourage you to research all the avenues you can to find what might work for you. Lack of sleep is enough to drive one crazy!

  • I take melatonin can you please explain what the problem is with it exactly. My doctor recommended it.

  • Yes I am ,it has been amazing. I have tried coming off the iron and sure enough the problem returned. So back on the iron. Have you tried it?

  • Are you doing the trial?

  • It gets so complicated doesn't it. I don't really mind how it works as long as it works for me. I am interested to see what happens when I fly because that is when I suffered most. Will let you know.

  • Thanks for your good wishes. Daughter is doing amazingly well. Whereabouts in the world are you?

  • I am in England. Keep up the exercise, you know it makes sense. Hope he enjoys college.keep up the good work.

  • Please say how much you and daughter take.

  • I agree it is amazing, quite magical. A pill that works at night but not by day.

  • Strange isn't it, I do get more relief at night than in the day. I can cope with it in the day if I get good nights though.

  • I'm fortunate in that way. I don't usually have daytime RLS. What I meant was that taking iron in the morning did not help my night time RLS at all and I completely expected it to relieve my RLS as it did for you and DicCarlson. And actually when I took it at night I didn't hold out much hope. But it worked! And has continued to work for over a week now!

  • I also take it plus use a spray on Magnesium supplement, seems to be helping. Long may it last. Also got all that info from this site, so much advice and support x

  • What time of day do you use the spray and what time of day do you take the iron. Is your iron the byglycinate type?

  • I take the iron just after my dinner it's a gentle iron capsule, packet says iron is fumarate. Use the spray about half an hourbefore bed. It makes my legs itch for about that long before they settle. Don't like to use it earlier as it seems to wear off around 6am. Hope you find something that helps. It's a truly hellish condition.

  • So, your gentle iron is fumarate. Mine says "Gentle" too but it's bisglycinate. Well if mine ever stops working I'll try your kind. No hell, just heaven for seven...days :)