A Happy Thank you: Just wanted to say... - Restless Legs Syn...

Restless Legs Syndrome

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A Happy Thank you

Tuccatoo profile image
3 Replies

Just wanted to say thank you so much to those who give such helpful advice on this site.

Having suffered with RLS for about 25 years, 6 years ago my doctor put me on Pramipexole. Bliss, it worked for a while. Then he increased the dose as it ceased to work......After a while that didn't work so he changed to Ripinorole with same effect. Last year he switched me to Rotigotine Neuro patches but after upping the dose again I still had hours of pacing around at night feeling suicidal and days when I could not sit down to eat a meal, watch TV (not even to pee!) It was getting worse and worse.

8 weeks ago I went on line and found this site. Having read many posts and articles suggested, I began to understand augmentation! I decided the only answer was to come off all drugs.

I have to say that it was really awful, even though I tried to come down gently decreasing every 2 days. Sometimes only one hour or less of sleep and throwing myself around. Sleeping pills didn't even work!

All I can say is "It's worth the hell!" I have never felt better than I do now and am at peace through the day. The nights are varied but some really good with 6 hours or so sleep.

Maybe I am one of the lucky ones but just wanted to say a huge THANK YOU.

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Tuccatoo
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Madlegs1 profile image
Madlegs1

So glad for you.

It's great to get a success story- and to give hope to so many others.

Hope you go well from here on.

Awesome news!

Wishing you many more good nights,

Joolsg profile image
Joolsg

Brilliant news. Wonderful that you can get 6 hrs sleep. Long may it continue.

Jools

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