Thank you for your advice/words of comfort. Managed 2 hours of sleep. I do find it really hard to cope as I am also battling depression and anxiety. It's not just the pain, the drowsiness the following day makes things worse, especially at work. I have fallen asleep whilst holding a carving knife whilst standing, and whilst taking a bath constantly. All these things are hard for my wife and sons to see. I can't sleep in the bed cos I find it uncomfortable aswell as keeping my wife awake. I really do believe I have been a bad person to have been cursed with this.
I am just so glad for this site so I know there are people to support me
Thank you.
Written by
restless1973
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I am so sorry you are having big time probs all that no one can see so don't understand,are you on any meds for rls because there is help as you know,yes the sleep is a big thing yes I fall asleep in the bath which worries my husband ,if you are a bad person well there are a lot on this forum don't think about it ,please get help best of luck x
As you say it can be very depressing but with the right support and understanding from family and loved ones life can go on very happily, you can always hope for a good day tomorrow....that's what keeps me going most of the time..Chin up and remember you are not alone, there are lots of us out here and sometimes , as they say, it's good to talk. All the best and never give up.
Don't give up hopefully things will improve for you . We have all had different problems with RLS the support on this site has been helping me so much and the support during my present issues. Don't think you did anything wrong. My mother had it & my 2 sons have inherited it unfortunately. Keep your chin up. This site has a wealth of people with a wealth of knowledge, good luck. Shaft1952
You are not a bad person and do not deserve this awful disease. Like the rest of us on here, you have simply inherited genes which give you this condition.
Once you sort your meds out and find the ones that give you better sleep, you will feel a lot better. You will get some good nights. Getting off the dopamine agonists is really hard so make sure your GP is on board to help. Take some info from this site in with you so he can see how you will need meds to get you through the augmentation and withdrawal stage.
There is light at the end of the tunnel and we are all wishing you the very best.
Onwards and upwards,
Take care,
Jools
If it wasn't for this site god knows what I would have done to myself by now!
Not only do I get comfort from the support and caring of those who post here but the knowledge has definitely made my life much better, (but you haven't cured me yet - get the finger out people ). I've gone from severe pain and discomfort for 18+ hours of the the day to only having a bad night every couple of weeks.
I'm going through the worst patch in a while - lost two full nights this week and am being forced out of bed by 6.30 as the drugs are wearing off and the restlessness is back but I haven't given up hope.
Long live HE's RLS forum and may all here find peace in their bodies.
Restless are you taking any anti-depressants for your depression. ? Sleep deprivation can make us depressed.
I am having bad nights, but then i have them most every night. My problems is not that the meds do not work, but that the meds give me side effects the next day, so i have to take such a low dose to TRY to get some sleep that i am up and down in the night. Lucky for me i am retired so can nap in the day, RLS permitting. We all know how you feel and this forum will give you help advice and most of all support. And we can get a little crazy sometimes, well some of us can, if some previous posts are anything to go by. And non of us are bad, just flipping unfortunate to suffer a condition that robs us of sleep. RLSers, are some of the strongest people i have met over the years. We survive, we wonder how sometimes, but we do. Stay strong hard as it is to do at times.
Hi! yes I am taking sertraline 100mg for my depression, aswell as fortnightly counselling sessions.
Hi restless, unfortunately that anti-depressant is probably making things worse for your RLS. BUT, when you HAVE to take a anti-d, then its what you have to do.
I will post a couple of website's for you to look at, one is USA based altho most everything on that site applies to everyone regardless where you live. The other website is the UK one, both give information on the anti-d's apart from other useful info on what can make RLS worse for most of us. If you look at the med list on the USA one, the dopamine med doses are not correct so please disregard them, the doctor on that site, who is one of the best RLS specialist has not updated those doses. rlshelp.orgrls-uk.org. I dont mean to be nosy but are you taking the anti-d because of having the RLS, as suffering this condition can cause depression, or are you taking the anti-d because of something else going on with you. You do not have to give any info on here if thats the case. There are 2 anti-d's that are more RLS friendly than your one. Maybe something to be discussed with your doctor.
Hello again. Its fine of you to ask. I have other issues which require the anti ds.
Ok, i thought you might. All i will say is, take the anti-depressant info along to your doctor, and see what your doctor says. See if there is a chance to change your anti-d to a more RLS friendly one. If that is not possible then you will have to stay with the one you are on. I do know some people who are taking anti-d's for chronic depression and are taking a better one which doesnt make RLS worse. Good Luck. x
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). I've gone from severe pain and discomfort for 18+ hours of the the day to only having a bad night every couple of weeks.
And non of us are bad, just flipping unfortunate to suffer a condition that robs us of sleep. RLSers, are some of the strongest people i have met over the years. We survive, we wonder how sometimes, but we do. Stay strong hard as it is to do at times. 
A big thank you
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Prapimexole - Confused - Thank you!!
Neupro users - what other meds are you on?
