RLS-UK 2017 Annual General Meeting

[Daragh]

The RLS-UK 2017 Annual General Meeting will take place on Saturday, 2nd September at the National Council for Voluntary Organisations (NCVO), Society Building, 8 All Saints Street, London N1 9RL, about a ten-minute walk from King's Cross and St Pancras stations.

Directions: ncvo.org.uk/about-us/venue-...

We have taken member feedback from previous meetings and want to make the day more interesting and useful for you, so we are introducing workshops in the morning which we hope you can attend.

We plan to host three workshops (which will be repeated) and invite you to indicate which two of the three you would like to attend.

The agenda for the day is as follows:

09:15-09:45 Registration for Annual Reports and Workshops (Room 1)

Tea, coffee and biscuits will be provided.

09:45-10:15 Chairman’s Report and Treasurer’s Report (Room 1)

Workshops

10:30-11:00

Room 1: Exercise as a means of reducing RLS symptom severity (Dr Giorgos Sakkas)

Room 2: How to work with your GP to manage your RLS (Dr Julian Spinks)

Room 3: Lifestyle factors and episodic occurrences of RLS (Dr Kirstie Anderson)

11:00-11:15 Break and relocation to next workshop

11:15-11:45

Room 1: Exercise as a means of reducing RLS symptom severity (Dr Giorgos Sakkas)

Room 2: How to work with your GP to manage your RLS (Dr Julian Spinks)

Room 3: Lifestyle factors and episodic occurrences of RLS (Dr Kirstie Anderson)

12:00-13:00 Registration for afternoon session and lunch.

Please note that lunch will be provided. Food from outside of the venue is not permitted and we could be charged for any breaches.

Afternoon Session

13:00-13:10 Welcome and Introduction, Daragh Bogan, Chairman RLS-UK

13:10-13:30 Value of Treatment for Brain Disorders study, Joke Jaarsma

Joke Jaarsma is past-president of the European Alliance for RLS (EARLS) and Board member of the European Federation of Neurological Associations (EFNA).

13:30-14:00 Side effects of RLS medications, Prof. Adrian Williams & Elaine Lyons

Professor Adrian Williams is the Clinical director and consultant sleep and respiratory physician at Guy’s and St. Thomas’s NHS Foundation Trust.

Elaine Lyons is a Clinical Pharmacist (Sleep Medicine/ Respiratory) at Guy's & St Thomas’ NHS Foundation Trust.

14:00-14:20 Lifestyle factors that could influence RLS, Dr Kirstie Anderson

Dr. Kirstie Anderson is a consultant neurologist who runs the Regional Neurology Sleep Service at the Royal Victoria Infirmary in Newcastle.

14:20 Coffee break

14:50-15:10 Findings from RLS and Pregnancy Survey, Dr. Giorgos Sakkas

Associate Professor Dr. Giorgos Sakkas, Faculty of Sport, Health & Wellbeing at Marjon University, Plymouth.

15:10-15:30 Influencing health commissioners, Dr. Julian Spinks

Dr. Julian Spinks is a GP, Writer and Vice Chairman of Kent Local Medical Committee and medical advisor to RLS-UK.

15:30-16:30 Group discussion / Q&A’s

16:30 Close

Invitations to our AGM will be sent tomorrow to RLS-UK members. For health and safety reasons pre-registration is required and we will not be able to allow anyone who has not pre-registered to attend.

___________________________________________________________________________________________

If you are not a member of RLS-UK and would like to attend, please email the details below to [e-mail] by Friday, 18th August. We need ALL of these details, please.

Name:

Address:

Will you have a guest/partner with you? If yes, please also provide their name:

Workshops - Using the information above, please choose the workshops you would like to attend by putting an 'x' against one workshop option from each of time slots below:

10:30-11:00 (Please choose only ONE option)

Room 1: Exercise as a means of reducing RLS symptom severity

Room 2:How to work with your GP to manage your RLS

Room 3: Lifestyle factors and episodic occurrences of RLS

I will not be attending this workshop

11:15-11:45 (Please choose only ONE option)

Room 1: Exercise as a means of reducing RLS symptom severity

Room 2:How to work with your GP to manage your RLS

Room 3: Lifestyle factors and episodic occurrences of RLS

I will not be attending this workshop

Lunch - If you have any dietary requirements, please let us know:

[Joolsg]

Thanks for that info. If members wish to bring a partner/ guest, presumably the same info has to be sent by email?

[Daragh in reply to Joolsg]

Yes, please, Joolsg. Looking forward to seeing you on the day!

[Hidden in reply to Daragh]

Hey,

Thinking of flying over from Norway. Joolsg already gave me info. re airports and public transport, but I have a couple more.

Does the conference cost anything?

Do you have any deals with hotels? Any group rates?

[Kaarina Administrator in reply to Hidden]

Hi Jess,

It would be great if you could attend. Attending the AGM is free. As far as I know RLS-UK does not have any deals with hotels. Perhaps looking at a Travelodge in Kings X or Hub by Premier Inn near Kings X would hopefully be OK and not too expensive.

[Hidden in reply to Kaarina]

Yes, Joolsg also recommended Premier Inn. I looked at the one at King's Cross. It's a bit on the expensive side, so I'll keep looking. So, I just sign up by the August 18 by sending my name, address, and if I'm bringing anyone?

[Kaarina Administrator in reply to Hidden]

Hi Jess,

Yes, please email details of your name, address and if bringing anyone, their name too plus which workshops you wish to attend. Email address: [e-mail] by Friday, 18th August.

Any other questions, please do not hesitate to ask.

[Kaarina Administrator in reply to Hidden]

Hi Jess,

You will hopefully find some good deals if you visit the Trivago website. Perhaps look on that site for Premier and Travelodge hotels.

[Hidden in reply to Kaarina]

Having a really hard time finding a flight price that my husband is happy with. I can't say anything, though, since he's the one with a job. I'm still trying.

[Kaarina Administrator in reply to Hidden]

Hi Jess,

If you are a member of RLS-UK the AGM will be summarised in the next Newsletter that is distributed after the event. rls-uk.org/membership/

[Hidden in reply to Hidden]

I am determined to come, so I have one last question:

Ryanair only flies into London Stansted. I just looked at the map and boy, it's a ways away! Is there an easy way to get from there to King's Cross? Remember, I don't drive.

[Daragh in reply to Hidden]

Hi Jess3468, it looks a long way on the map but actually it's not that bad (I use the route regularly). You can book the Stansted Express in advance (and save money) from Stansted to Tottenham Hale station. At Tottenham Hale you can change to the underground/tube/metro and take the Victoria Line to King's Cross. Assuming you take the Stansted Express (which runs every 15 minutes), the entire journey is about 1 hour from Stansted airport to King's Cross. I hope this helps and hope we see you seeing you in London! Daragh

[Kaarina Administrator in reply to Hidden]

Hi Jess,

The following links will more than likely be helpful in finding a way to travel from Stansted to Kings X and vice versa:

There is quite a choice.

easybus.com/en/london-stans...

thetrainline.com/train-time...

stanstedairport.com/getting...

rome2rio.com/s/London-Stans...

Do not hesitate to contact me again, should you so wish.

[Hidden]

Was able to stay within my husband's budget, so I'm coming! Will register with chairman soon! I can't wait to meet all you wonderful people!!

[Kaarina Administrator in reply to Hidden]

Well done! Brilliant news!

[Hidden in reply to Kaarina]

I'm going to be taking the high-speed train from Heathrow to Paddington station. How would I get from there to the Arriva hotel at King's Cross?

[Kaarina Administrator in reply to Hidden]

Hi Jess

tubeplanner.com/search/resu...

Take the Hammersmith & City Line (H&C) from Paddington Station. It is about a 5 minute walk to this line - well signposted.

Journey takes about 15 minutes to Kings X.

There are Information desks at Paddington station and you can usually find someone who works at the station, to help you with directions should you need guidance.

The Arriva Hotel is only 6 minutes walking from London King's Cross St. Pancras Station.

The Circle Line also goes to Kings X from Paddington and takes the same amount of time. Good to know of two options in case one line has minor delays or worse.

I hope this helps. Any more questions please ask.

[Hidden in reply to Kaarina]

Thanks.

[Crazyleggs]

I gave not seen any meetings scheduled for America. Anyone doing it?

[Hidden in reply to Crazyleggs]

The only ones i know who MIGHT do meetings across the pond are Restless legs Syndrome Foundation. You would need to contact them and ask.

[Crazyleggs]

I am so bummed. I want to come. But even if I could afford to fly to London from California timing is not good. I'm teaching a workshop on the 10th and that's too close to Sep 2 considering travel time for both But my heart and support is coming. Bless all you dear fellow friends. Let's do it again next year so I can come

[Kaarina Administrator in reply to Crazyleggs]

There will be an RLS-UK AGM again next year, Crazyleggs, usually about the same time of year, beginning of September.

If you are a member of RLS-UK the AGM will be summarised in the next Newsletter that is distributed to members after the event. rls-uk.org/membership/

[Hishoney]

I would love to be able to see this on TV. Is there any way I can do this in the USA? I get a tv channel from the UK, but would like to know how to do this. Also if I could get it in my iPad, I’d be so happy!

[Kaarina Administrator in reply to Hishoney]

The RLS-UK AGM is not televised, Hishoney.

[Hishoney in reply to Kaarina]

Oh, I’m so sorry! I would have loved to see it, and obviously I can’t go to England. Oh well. Kaarina, thanks for telling me!