Hi this is my 1st post in the group. I'm a 58 y/o guy who has had symptoms of RLS for at least 30 years. I write this post with benzos in the title as I strongly suspect their involvement in the development of my RLS symptoms. I'm currently at the end of a 9 month slow taper off of diazepine (Valium). My final dose was 0.25 mg/day until I jumped off completely about 2 months ago. I have been keeping a daily journal of symptoms during this period. A pattern emerged of RLS + gastric discomfort roughly 1 week following a dose reduction that would then stabilise as my body became used to the lower dose. I put these down to being physical withdrawal symptoms from long term intermittent benzodiazepine use.
Now since jumping completely - gastric discomfort + RLS symptoms were a nightly occurrence and despite trying a multitude of OTC remedies the only thing that made the symptoms disappear was a "rescue dose" of about 10mg Valium - that would last for say 2 weeks and the gastric discomfort +RLS would return.
I finally visited my doctor a few days ago and he diagnosed RLS & prescribed 0.25mg Pramipexole to be taken once at night time. As I'm very much trying to discontinue dependence on any drug - I only took half the tablet of 0.125mg to see if that dose would work. I've used 0.125mg on 2 nights now with good effect.
I only take the drug if I lie down to sleep and the symptoms are severe enough to prevent sleep onset. The 1st night - I took the drug (0.125mg) around 2 am and was asleep very soon after and woke feeling "fresh" and rested. The next night didn't require any drug... however - last night I took the drug (0.125mg) and again was asleep very soon and awoke following a very good undisturbed sleep.
I wonder if anybody else has attempted to approach their dosage at such a low dose and also after the onset of the RLS symptoms? I also intend to only take the drug if the RLS symptoms appear - not as a regular preventative every night.
Nor do I intend to increase the dose unless this current dose begins to lose its effectiveness.
Your thoughts are appreciated.