APPRECIATION TO ALL FOR CONSTRUCTIVE ADVICE

I was a sickley child with unexplained nausea and vomiting occurring on a regular basis. As an adult, I now understand that it is indeed explainable. It is a consequence of fatigue, which is a consequence of no sleep.

I have recently moved to a very small country town in South West Queensland. For some unknown reason the doctors here seem to believe that they have more knowledge regarding this disease than the Specialists in the city who diagnosed me have.

So in their ill-informed expert opinions they decided to take me off my sleepers (of which I have been taking for 30+ years) cold turkey. And of course, it had to be on a Friday, which also happened to be the beginning of a long weekend.

So I was unable to contact my previous doctor for a script for my Temaze. And yes, I do appreciate how fortunate I am to still be experiencing supreme success with Temaze, without ever having to increase the dosage.

So I had 4 days of absolutely no sleep whatsoever. By the 2nd day the nausea set in. By the 3rd day the vomiting arrived. In my desperation I made a ridiculous decision. In my medicine cabinet I knew I had some Maxolon (and altho fully understanding the consequences of taking this med, I took it anyway). STUPID STUPID STUPID !!!

Within15 minutes of consumption the nausea/vomiting subsided. Within the next 15 minutes the RLS arrived with avengence. So I did the obvious thing (to me) and threw down some Siffrol (believing it might counteract the effects of the Maxalon). But unfortunately, this idiot idea was unsuccessful. It took 6 hours for the RLS to subside by which time I was absolutely exhausted but still unable to sleep.

By the 4th day I was ready to ... well ... I was just ready.

On the Tuesday I finally got hold of my previous doctor who happily prescribed the Temaze without hesitation. And thanks to the advice from you guys regarding an anti nausea medication that had no effect on RLS, I was armed with the knowledge to request a further script for Motilium via script as well.

FYI ... it worked a treat.

The script was then faxed to the local pharmacy and by Tuesday night the nausea, the vomiting, and the RLS were history and I slept like a log for 9 hours.

Thanks everyone for your solid advice. I love this site. xxxx

BTW ... during my early research (when I was first diagnosed) I discovered a site describing the symptoms, and I remember reading the word 'falling'. I immediately rang Mum and asked, 'All those broken bones I had a child, could they have been caused by RLS. (I had 10 ... the worst being at age 12 coming out of a double summersault on a trampalene. I remembered it clearly. Laying spread eagle screaming in agony, pleading with everyone not to touch me anywhere (my whole body was engulfed in pain) until the ambulance arrived. I had actually double sprained my right ankle. Plaster knee to toes for 3 months. We eventually came to the conclusion that RLS was not the cause of these breaks. Pheww .... at least that's one symptom that I don't have. About 2 hours after talking to Mum .... I fell. I have experienced this predicament 2/3 times EVERY day forever, but because it happened so often, my body was accustomed to it and could automatically straighten itself immediately, managing to stop the fall. Unless, of course, I happened to be running or jogging or happened to be wearing heels, and then, unfortunately, over I'd go and I'd fall.

What would actually happen is my knee (at the time it was only in the right knee) after a stride, my knee would click backwards and cause me to over-balance. Anyone else experience this?

FOOTNOTE: I successfully competed at State level in the sport of race walking, However, I couldn't run to save myself. Have you seen race walking? The legs are forced into a backwards over- extention position automatically, so when my knee clicked backwards, I wouldn't feel it.

In remembering that double sprain on the tramp ... my recollection of the incident was suddenly clear. My knee did in fact click backwards on landing.

So many pegs have fallen into place in my life once I was diagnosed and began to understand this hideous disease. I hate it.

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I have to apologise for including such long posts, but the inclusion and acceptance into this site is so new to me and is also extremely exhilarating and the enjoyment I receive from sharing is inexplicable.

I crave to share my entire story, however with it being so long, miserable and involved, I feel it would be more interesting, understanding and informative, if told in short bursts.

I thank you all for your patience.

[Madlegs1 in reply to Hidden]

We truly appreciate that. Thanks.