Did it work.

[marsha2306]

Well tonight is the nite we begin to find out if my iron infusion on March 10 worked. I had my ferritin level tested on Wednesday and it went from 70 to 615 after the infusion. I am to decrease the gabapentin by 300 mg every 3 or 4 days and cross my fingers.

[Joolsg]

Wow, that's an enormous increase. How do you feel? Are the legs still jumping?

Fingers, arms & legs crossed for you.

Jools

[marsha2306 in reply to Joolsg]

No jumping, crawling or kicking at all!

[AnneJende]

Crossing all my fingers and toes for you! I'm calling my Dr to hopefully get myself in sooner for mine.

Keep us updated!

[Bkc1777]

Wow! What an increase! Hope things get better from now on.

Let us know!

B. X

[Hidden]

Wow, that is a HUGE increase. I hope it will work for you, fingers crossed. But i HOPE they are happy with that 615 ferritin level, seems very high to me.

[marsha2306 in reply to Hidden]

Not sure but doc may be thinking it's ok because it dips at night or that it dwindles over time - don't know. I had only gotten an email from him to start weaning. The test results are sent separately.

[Hidden in reply to marsha2306]

Yes the ferritin level does seem to go back down over time. Then another infusion can be done. Glad its working for you and you continue to be RLS free.

[Pluto46]

Any more iron and we can use you as a fridge magnet

[marsha2306]

Slept like a baby! Took 600 mg gabapentin instead of 900 at 9 pm. Then sat and worked on balancing my checkbook for a while. Then sat on the bed and checked some stuff on my iPad til midnight. Not a twinge at all!!!!

I'll do 600 for a few more nites and then down to 300 mg.

[NoMoRLS]

Fingers toes legs crossed too. ✌✌✌✌

[involuntarydancer]

Wow; that is amazing Grammie. I hope you will keep us posted. Now I am wondering (again) should I look for a transfusion as increasing my levels to over 100 has already resulted in a substantial improvement in my symptoms. I have fingers crossed for continued success for you. Well done.

[marsha2306 in reply to involuntarydancer]

Do you see a doctor that will prescribe it for you?

Thanks for the good wishes.

[involuntarydancer in reply to marsha2306]

My sleep consultant actually suggested it last year.

[marsha2306]

Well, I'm down to 300 mg of gabapentin; down from 900! So far so good.

[involuntarydancer in reply to marsha2306]

Oh wow! I am SO pleased for you. I hope you will continue to update us.