I posted a few weeks ago about seeing a Kinesiologist as an alternative route to finding some solutions. The dury's out so far and it definitely was a weird experience !
She picked up on my Kidneys being out of balance and not functioning correctly mixed with deficiencies in Iron, Magnesium, B and B12 vitamins which are often mentioned by you on this forum and rls literature. She said all my current OTS vitamins were useless and doing nothing and I had to pay a small future for some organic pure ones together with a diet of No Wheat, No Cow dairy or Pig meat. A tall order as all gluten free food is horrible but I'm following through as I've got nothing to loose. She has said each person is different and it can take a few weeks to notice any changes but I must say that with out mentioning the dreaded word S---p I do seem to having a better nights. She is taking a gentle approach and I see her again on the 20th March so will keep you posted.
What I have noticed is staying off all sugar is helping ! And definitely not hindering, but when having sugar it triggers a far worse patch and my arms and legs go nuts.
I haven't tried coming down from my Meds yet as she suggested waiting to see how it goes. Just thought the info may help someone going through the same.