I go to the neurologist today and I'm going to discuss some things with him. I'm going to ask him if anything new has come along. I'm going to tell him what I have been doing to help myself lower my dose of Meripex. I'm going to get.50 meligrams of Extended release Meripex and still keep my.75 just in case I need it. I'm going to discuss my diet and see what he says. I have noticed in the past Drs will not dicuss it much they just do what they want to do and want really listen to the person that experiences this condition. I'm going to time how long he listens to me before he cuts me off and moves on. I believe they have no answers and they just add the medicine and really don't tell the person how hard this is to get off of and then they will turn you down on pain medication to get off of it. That's not right if they get you on it they should take responsibility and help in anyway to get a person off of it. Anymore before i start talking about RLS to any Dr I ask them have they ever experienced it before and so far the ones I have ask say no. So it's hard for them to really understand what we go through. Its unbelievable how painful RLS is. I call it pain and can wear on a person and all the side effects of the medicines are horrible. All we want is to be understood and helped. He turned me down last time on giving something for me to relax I as him for colazapam and he wouldn't dicuss it I thought really. Wow I would be scared to ask for any pain reliever stronger than Advil. I may ask him just to see how he reacts to me. If he treats me wrong for asking I will not go back. Thanks for this awesome group :)!
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