Twitching toe with RLS: Hello, I have... - Restless Legs Syn...

Restless Legs Syndrome

22,319 members16,383 posts

Twitching toe with RLS

halogen profile image
6 Replies

Hello,

I have RLS but my main problem is my twitching little toe, I know it sounds weird but it drives me crazy. I have to cross it over the next toe to get some relief as it happens most of the day, but when it happens at night it's a nightmare. It affect going to the theatre or cinema. Doctors haven't a clue and treat me as though I am weird and to be honest it looks very weird, when the toes have a mind of their own twitching away It looks as though I'm doing it. Does anyone else have this problem.

Written by
halogen profile image
halogen
To view profiles and participate in discussions please or .
6 Replies
Pippins2 profile image
Pippins2

It could be periodic limb movement that is causing the twitching

halogen profile image
halogen in reply toPippins2

Thank you for the reply. What can I do?

Pippins2 profile image
Pippins2 in reply tohalogen

Well IF it is PLMD the meds are the same ones used for RLS.Are you on any meds?

halogen profile image
halogen in reply toPippins2

Sorry for the delay in replying. I have never been diagnosed with RLS and really don't want to take medication, I know I have it but as I said it's the toes that are the nightmare. I do take citalopram but have been reducing it for the past few months and found an improvement in my legs but not really the toes, I do plan to be citalopram free.

Pippins2 profile image
Pippins2 in reply tohalogen

Maybe the toe problem is a seperate condition?

halogen profile image
halogen

Sadly the doctors are not really interested.

Not what you're looking for?

You may also like...

Big toe moving uncontrollably!?

I have another new symptom together with my RLS and PLM. All of a sudden my big left toe moves....

Twitching Toes and Sleeplessness

Just lately I realized that my twitching toes have been mostly the cause of insomnia and not the...
Magnanotube profile image

INVOLUNTARY TOE MOVEMENT

I have had what I refer to as restless toe syndrome... My big toe and the one beside it on both...
JessNich6 profile image

RLS ?

I started with nocturnal leg cramps and twitching of calves about a month ago. This occurs mainly...
Chiquita123 profile image

Please help with RLS

My RLS starts as a tingling in my feet and shoots up my legs. It is not painful, but it is highly...
Sarge profile image

Moderation team

Kaarina profile image
KaarinaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.