Twitching toe with RLS: Hello, I have... - Restless Legs Syn...

Restless Legs Syndrome

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Twitching toe with RLS

halogen
halogen

Hello,

I have RLS but my main problem is my twitching little toe, I know it sounds weird but it drives me crazy. I have to cross it over the next toe to get some relief as it happens most of the day, but when it happens at night it's a nightmare. It affect going to the theatre or cinema. Doctors haven't a clue and treat me as though I am weird and to be honest it looks very weird, when the toes have a mind of their own twitching away It looks as though I'm doing it. Does anyone else have this problem.

6 Replies
oldestnewest

It could be periodic limb movement that is causing the twitching

halogen
halogen in reply to Pippins2

Thank you for the reply. What can I do?

Pippins2
Pippins2 in reply to halogen

Well IF it is PLMD the meds are the same ones used for RLS.Are you on any meds?

halogen
halogen in reply to Pippins2

Sorry for the delay in replying. I have never been diagnosed with RLS and really don't want to take medication, I know I have it but as I said it's the toes that are the nightmare. I do take citalopram but have been reducing it for the past few months and found an improvement in my legs but not really the toes, I do plan to be citalopram free.

Pippins2
Pippins2 in reply to halogen

Maybe the toe problem is a seperate condition?

Sadly the doctors are not really interested.

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