INVOLUNTARY TOE MOVEMENT

[JessNich6]

I have had what I refer to as restless toe syndrome... My big toe and the one beside it on both feet constantly twitch... day and night .., I have calluses and blisters in between the toes on both feet. This has gone on for over a year or more Does anyone else have this problem and what can it be from ??? Please help

[Madlegs1]

Not rls.

Check out neuropathy.

[LotteM]

I second Madlegs opinion.

[Hidden]

Hi!

I third Madleg’s opinion and second Lotte’s.

I’m sorry, that must be annoying. I hope you find relief soon!

[Hidden]

Hi I have been diagnosed with RLS in one foot although that is debatable as I do not fit into many of the criteria. I do not have twitchy toes although the sensation is in some of my toes. Hope you get some help soon.

[Hidden in reply to Hidden]

You have to have all the criteria for RLS, to be diagnosed with having it. The urge to move is the part that you HAVE to have. a urge you cant resist, its a voluntary movement. If you dont have that urge then its not RLS.

[Hidden in reply to Hidden]

You are saying the same as everyone else on the Forum but my neurologist still feels that is what it is.

I do get alot of cramp in my toes - does anyone else?

But - if its not then what is it? Thats the 64 th dollar question!

[Hidden in reply to Hidden]

Hi! Sorry it’s so frustrating not to get the answers you want. I’m sure you’ve already thought of this, but have you asked your neurologist why he thinks it is RLS as opposed to something else?

[Hidden in reply to Hidden]

Hi again and thanks for your input.

I think he eventually realised that just possibly it could be something else as he has ordered an MRI scan on head, neck and spine. So we will see.

[Hidden in reply to Hidden]

Good luck!