Wish i knew the answer hun, even the experts are at a loss, more research is needed, we all agree with that, but not a lot funding goes to this condition, like other conditions where they get a bigger slice of the funding. All we can do regarding the meds available is to try them and hope we get the relief and sleep our bodies crave. You are feeling so down because of the lack of sleep, sleep deprivation can lead to depression plus other health issues, could be why you have high blood pressure. You need to try the meds to find that relief, the first med might not work or agree with you, so then you try another til you find one for you... its trial and error unfortunately. Most of us have gone down the trial and error route. No medication we use seems to be forever, we have to keep changing them. Please stay strong, if you get the right med to take and get some sleep, you will feel better all round... I think alot of us can relate to the...why be alive... I have had those thoughts too, when i couldnt find a med to suit me. Just know, we are here for you....Having a rant and moan to those who understand can help, thats why support groups are very important.
I have to tell you that the low dose of morphine I have in my infusion pump, only 96 microgram, does not send me in to a coma. I have quite a normal life now, and so do a lot of other people with RLS and different kind of medicines.
But they are not here, they are happy with their situation and do not need to turn to us for advices, comfort and help. One problem with forums like this is that you only see the unhappy ones here, but on the other side it is here you can get support when your thoughts are dark.
I would so love to hear from these people who are living a normal life. Are you one of them? How did you get there? Seriously ... I'm not saying this in a patronising way. I really would like to know.
I agree with Elisse and Swedish. Jaynielynne you must try to be positive. It is very hard and we have probably all had dark thoughts at one time or another. I am currently doing OK on my meds but that's not to say I don't go through periods where it gets really bad again. At those times people on here have helped me by listening and suggesting and you too will get the same help. There will be something to suit you and give you relief. I don't know whether you are in the UK or not but my advice would be to do some printouts from this forum, and also the rls.org website, and take them to your doctor. Ask for some help to get some sleep at least until you find a med that suits you. It doesn't have to be forever so you won't get addicted and a few good nights will help you get your thoughts and feelings straight. As Elisse said, the very worse thing is sleep deprivation because that affects you whole mind and body. Good luck x
It's not all bad news on here but we do tend to rant a bit when things get us down. I do have to go to work too and it's very hard sometimes. Do try the meds as suggested I have been on pramipexole for sometime and as long as I take it at the right time I get a reasonable night although I have to lie on the floor in the evening to watch tv. The pressure seems to help.
Morning Janynelynne, we all understand how you feel. I have often thought about driving into the river at the bottom of our road, when having being up all night pacing the floors. Un fortunately none of the doctors want to listen, just fill you full of Pramepexole and other drugs, but they do give relief. At the end of the day its like having a headache, people dont hesitate about taking paracetemol, so try the medication and see what relief you can get. I have walked so much over the years, my son got me a pedometer, he worked it out that I did the equivalent of 15 marathons a year, we all accept that RLS is unbearable if left un treated, but we all really need to try and make our docs listen. Hang in there Jimeka
I know how you feel... i have justnhad bloods taken that.my sugar levels are abnormal so have fasting bloods next week. I am being treated for depression also. But took myself off of ametriptyline cus it made problem thousand times worse. I take sleeping pills when the doctor will give them.to.me which is about 2 weeks every six months. Im knackered all the time. Im off.work sick at the moment because of depression, no sleep, feeling anxious all the time and a banging headache that hasnt shifted for weeks and im sure the whole lot is linked. My iron.levels are at 5 when they should be between 50 and 240 bit we are working on that. When i go to tje doctor and tell her i want to go to sleep i always end up crying and feel a total prick. Id happy with sleeping pills for thenrest of my.life because even un natural sleep is better than no sleep. I.made the.mistake once at about 3.30 am of getting in.my car and driving to tesco because i was going out of my mind walking up and down the sitting room and once i got on the dual carraigeway it escalated and how i never crashed my car that night i dont know but know ill never get in a car again with it.
I still have the flu and I'm tired even though I slept all week so far.
I am taking a narcotic because I went into the emergency room with
being so sick and my legs wouldn't stop moving. A Chaplin came in
and asked if he could pray for me. I started crying because I was so
sick and not sleeping. That's how I ended up getting valium and codine.
I wanted sleep and they were all worried about me talking to a councillor.
I am going to follow up with my regular doctor on Friday. I am off of work
for another week with this. The flu is really bad.
RLS at its worse...! Flu knocks you for six, i know when i have had the flu all i wanted to do is sleep. Your body sort of shuts down trying to recover. I know meds for RLS was not on your agenda, but pleased to hear the hospital gave you some thing to quiet your legs and for you to get that much needed sleep. The last bout of flu i had a few years ago, i was off work for three weeks, you start to feel better, but it leaves you with no energy. So, be in a rush to return to work. Feel better soon.
I would not recommend what I'm having now that I have the after effect of side effects but I have been able to sleep lately. Eating at night is a must not for me and eating wheat and dairy. I have Clonazepan in case I see its going to be a bad night but in the holidays I avoid it. Pregavalin has helped but has nasty side effects. Neupro can help but also has had horrible side effects, luckily I'm hardy using any now. Take care.
Unfortunately it has never been considered worthy of research like cancer and heart desease, simply because you cannot die of it; I says this because it in itself does not cause death, but it sure makes you feel you want to end it all. It is a relentless tortuous disease which can only be managed at best, because no cure exists , yet! I really feel for you, but maybe something on this forum will work for you, even if it's just getting the support from other sufferers. Keep reading what others have tried, and most of all, don't give up.
I don't know if this will work for you, but I do know I can completely relate to the description of your life with rls. Doctors who think rls is nothing serious should have to try living with it themselves for a bit... a very long but.
Now, something you might give a try: nicotine mints. I know, nicotine is said to exacerbate rls, but there has been some research that suggests (for some people) it can actually help; I am one of those oddities. I don't like using the mints, and am actually embarrassed to buy them, always having to tell the cashier that I have never been a smoker and use the mints to treat my rls. I keep 1mg mints on hand, and when my meds just aren't working I will utilize the mints. But do me advised, they might just make it worse.
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Enough is enough. 
first time, long time - mind if i just vent a little bit?
Caz
RLS and diet
A new member hoping to learn from others
