Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

22,151 members • 16,007 posts

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It is very frustrating to not be able to access HealthUnlocked. 505 Bad gateway is what I usually get. Granted the one today which lasted at least 1 and 3/4...

It is very frustrating to not be able to access HealthUnlocked. 505 Bad gateway ...

SueJohnson

•15 hours ago

24 Replies

Blood results

Blood results from the local NHS neurologist say: “Iron level 22 falls within normal range” Is this ferritin?! This was after 2 weeks of being on ferrous...

Blood results from the local NHS neurologist say: “Iron level 22 falls within n...

Islay9

•1 hour ago

4 Replies

How much codeine should I take?

I’ve just had telephone consultation with a G.P. I’ve had no sleep for 4 nights, I’ve stopped the pramipexole completely now. Took the last one on Sunday...

I’ve just had telephone consultation with a G.P. I’ve had no sleep for 4 nights,...

Delilah162

•17 days ago

58 Replies

Help please

Hi, Im new to the forum hoping to get some ideas and advice. I’m was dx severe rls and periodic limb movement disorder last year by a Neurologist after having...

Hi, Im new to the forum hoping to get some ideas and advice. I’m was dx severe r...

Delilah162

•1 month ago

81 Replies

RLS after stopping citalopram

Hi there, In May, I decided to wean myself of 40mg citalopram which I had been taking almost continuously for 18 years. I did this with the support of my GP....

Hi there, In May, I decided to wean myself of 40mg citalopram which I had been...

Teafortwo1

•6 days ago

31 Replies

long read: asking for community help deciding next steps -- worsening RLS/PLMD, medications, Neurologist, no sleep, HRT

Hi everyone, I haven’t been around in a long while because I’ve been unwell and dealing with family matters. I always feel guilty popping back in after a...

Hi everyone, I haven’t been around in a long while because I’ve been unwell an...

HappyGreenBean

•3 days ago

21 Replies

Rotigotine patch

Has anyone used a Rotigotine patch for restless legs?

Bridall

•21 days ago

54 Replies

Has anyone considered or used legal prescription cannabis?

Hi All again, Sorry I keep asking for advice. I’ve been particularly dreadful last few afternoon/nights limbs all over the place, head nodding, grimacing...

Hi All again, Sorry I keep asking for advice. I’ve been particularly dreadful ...

Delilah162

•26 days ago

60 Replies

Help needed please

Hi all!After 30 years of Pramipexole I went on Pergabalin. I was dizzy with it and had many falls. I am now on Gabapentin 600 mg 2 hrs before sleep and it...

Hi all!After 30 years of Pramipexole I went on Pergabalin. I was dizzy with it a...

Moonwalker1967

•14 days ago

44 Replies

Buprenorphine

so I took my first dose of Buprenorphine last night. I started with 1 mg,that wasn't enough so I took the other half ( I have the 2 mgs) This stuff is amazing!...

so I took my first dose of Buprenorphine last night. I started with 1 mg,that wa...

Retiredandrestless

•3 days ago

20 Replies

UK RLS Patients Survey

RLS-UK is working with Joeli Brearley at Pregnant Then Screwed and have prepared a survey for completion. Would all UK members please complete? Many thanks....

RLS-UK is working with Joeli Brearley at Pregnant Then Screwed and have prepared...

Joolsg

•1 month ago

62 Replies

Suvorexant for Insomnia.

https://www.sciencedirect.com/science/article/abs/pii/S1389945724004258 A small study by Dr John Winkelman on Suvorexant to help sleep quality in patients...

https://www.sciencedirect.com/science/article/abs/pii/S1389945724004258 A small...

Joolsg

•9 days ago

32 Replies

Positive Update

I previously asked on this forum for advice for my husband in relation to a rls specialist in Ireland. This led to loads of great advice and knowledge in...

I previously asked on this forum for advice for my husband in relation to a rls ...

Minijackrussell

•7 days ago

27 Replies

Are We Telling People To Hitch Their Wagon To A Dead Horse In Terms of Other Day Dosing?

“Question What is the preferred oral iron supplementation strategy in patients with iron deficiency anemia (IDA)?” “Findings In this cohort study of 71 677...

“Question What is the preferred oral iron supplementation strategy in patients ...

DesertOasis

•6 days ago

23 Replies

no more RLS!!

A huge thank you to SueJohnson for recommending me to go to Dr Mark Buchfuhrer. He knows RLS inside out. After spending a good hour with him about my history...

A huge thank you to SueJohnson for recommending me to go to Dr Mark Buchfuhrer. ...

cesoni

•21 days ago

42 Replies

Neupro Patch

Please do NOT let any GP or neurologist switch you to the Neupro patch (Rotigitone). It WILL cause worse augmentation than Ropinirole or Pramipexole and the...

Please do NOT let any GP or neurologist switch you to the Neupro patch (Rotigit...

Joolsg

•1 month ago

53 Replies

appointment number 1

So. I told the GP I had RLS. He asked me what my diet was like, what my job was and got me to stand on my toes and then touch my toes. He had no questions on...

So. I told the GP I had RLS. He asked me what my diet was like, what my job was ...

Squirmy69

•18 days ago

37 Replies

Advice on Gabapentin for RLS

Hi everyone, been reading the posts and all very helpful..Things my first..😀 I have suffered from bad RLS for a few years, prescribed pramipexole since 2020....

Hi everyone, been reading the posts and all very helpful..Things my first..😀 I ...

Odinboy

•5 days ago

19 Replies

Appointment with Dr Robin Fackrell

I have an appointment with Dr Fackrell tomorrow morning and am feeling anxious. It's about my RLS and I am hoping that he will allow me to come off Ropinirol...

I have an appointment with Dr Fackrell tomorrow morning and am feeling anxious. ...

Faith_Hope_1

•7 days ago

22 Replies

Generic for Buprenorphine?

so tomorrow I see my gp. At first I was considering gabapentin but I see alot of you have good results with Buprenorphine, since it has a long life and I could...

so tomorrow I see my gp. At first I was considering gabapentin but I see alot of...

Retiredandrestless

•5 days ago

18 Replies

2 questions- Does buprenorphine give you insomnia?! Also what’s the best type to ask for?

one of my biggest problems is insomnia. Is rls and insomnia one in the same? which came first the rls or the insomnia? No idea. Sometimes I wake and then the...

one of my biggest problems is insomnia. Is rls and insomnia one in the same? w...

Islay9

•22 days ago

39 Replies

Sorry, just venting.

Hi, sorry in advance. I'm just feeling the need to vent frustration. So thankyou for reading this. Please scroll past if your low on energy. It's been a while...

Hi, sorry in advance. I'm just feeling the need to vent frustration. So thankyou...

Annty

•23 hours ago

8 Replies

Have you tried this or have you assumed it won't work?

Probably my last post because I solved my RLS problem. It's gone, and no drugs. I've posted this as a c omment in response to several individual posts but get...

Probably my last post because I solved my RLS problem. It's gone, and no drugs. ...

Bernaldi

•1 month ago

46 Replies

Help symptoms intensifying with pain in arms and legs

Lately I haven’t been able to sleep well and I think it’s causing my RLS to intensify. I feel pain in my arms legs and sides next to my armpits. I am in...

Lately I haven’t been able to sleep well and I think it’s causing my RLS to inte...

MrCrow

•15 days ago

30 Replies

Codipar

I’m from Ireland so very little knowledge of RLS by doctors here!! I weaned off premipexole as I mentioned here in my last post. I cannot take gabapentin as...

I’m from Ireland so very little knowledge of RLS by doctors here!! I weaned off...

Golferie

•4 days ago

15 Replies

Medication

Hello I have had RLS for around 7 years. I consider myself to have a healthy lifestyle. I exercise regularly, never smoked or drunk alcohol, have a healthy...

Hello I have had RLS for around 7 years. I consider myself to have a healthy ...

Y60NNEHS

•24 days ago

37 Replies

Neurologist in South of England

Hi fellow RLS people. Can anyone suggest a private neurologist in UK preferably South of England who will prescribe opioids? My doctor didn’t want to prescribe...

Hi fellow RLS people. Can anyone suggest a private neurologist in UK preferably ...

Alifromthegalley

•1 month ago

43 Replies

Nidra gadget for RLS

has anyone heard about this nidra technology which is available now in selected states in US! this gadget apparently is a wearble device non- drug therapy for...

has anyone heard about this nidra technology which is available now in selected ...

Mason21

•28 days ago

38 Replies

Serum Alpha synuclein levels reduced in RLS patients

https://academic.oup.com/sleep/advance-article-abstract/doi/10.1093/sleep/zsae217/7758610?redirectedFrom=fulltext This study shows a reduction in serum a syn...

https://academic.oup.com/sleep/advance-article-abstract/doi/10.1093/sleep/zsae21...

Joolsg

•1 day ago

8 Replies

UK RLS patients' Survey

We have received over 3000 responses to the survey so far.This is fantastic as it will enable RLS-UK to show the scale of suffering and enable us to push for...

We have received over 3000 responses to the survey so far.This is fantastic as i...

Joolsg

•29 days ago

38 Replies

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