Restless Legs Syndrome | HealthUnlocked

Restless Legs Syndrome

21,483 members • 15,160 posts

Going from no meds to pramipexole

Hi all I’ve had a bad RLS flare up due to over tiredness as we have a newborn. No chance of my sleep debt being reduced anytime soon, and I’m desperately...

Hi all I’ve had a bad RLS flare up due to over tiredness as we have a newborn....

BOWENATOR

•13 hours ago

16 Replies

TGIF! And thank God for Tramadol?

My answer is yes. Always do your own research. Tramadol is a combination opiate and the properties of an SNRI (antidepressant) and is very successfully used to...

My answer is yes. Always do your own research. Tramadol is a combination opiate ...

DesertOasis

•8 days ago

49 Replies

Impulse Control Disorder on Dopamine Agonists. TV Drama Mr Bates v The Post Office

I have been in touch with a producer of Mr Bates v The Post Office. This programme succeeded in forcing the British Government to pardon all those innocent...

I have been in touch with a producer of Mr Bates v The Post Office. This progra...

Joolsg

•22 days ago

80 Replies

Buprenorphine Trial

Some of you may be aware that I have been trying to get a trial of Buprenorphine for refractory RLS underway in the UK over the last 2 years.I initially...

Some of you may be aware that I have been trying to get a trial of Buprenorphine...

Joolsg

•24 days ago

83 Replies

Neutropenia /pregabalin

Hello...I've just had my 3rd iron panel results , showing ,neutropenia..this is new and wasn't present in my last results in march.It's a side effect of...

Hello...I've just had my 3rd iron panel results , showing ,neutropenia..this is ...

Baz33

•15 hours ago

13 Replies

Accessing Iron Infusion

hey folks Wondering if anyone can help or has experience with the situation I am in. I would be really grateful for some advice. I have had RLS since my mid...

hey folks Wondering if anyone can help or has experience with the situation I a...

Xicara

•5 days ago

34 Replies

Nausea & Buprenorphine

As some of you will have seen from my earlier posts I had succeeded in blocking RLS (after DA augmentation 7 months ago) by use of buprenorphine patches and...

As some of you will have seen from my earlier posts I had succeeded in blocking ...

davchar23

•1 month ago

91 Replies

Neurology

Hi everyone, I finally have my appointment with neurology 16th May .My gp is taking me off pregabalin and advising amitryptaline (excuse the spelling) I...

Hi everyone, I finally have my appointment with neurology 16th May .My gp is tak...

Baz33

•6 days ago

36 Replies

Opioid Treatment of Patients with Painful versus Painless Restless Legs SyndromeApril 2024Sleep 47(Supplement_1):A293-A294

And another - Introduction Recent studies characterized a clinically more severe and painful (compared to painless) form of restless legs syndrome (RLS)....

And another - Introduction Recent studies characterized a clinically more sev...

RLSLearner

•9 days ago

44 Replies

left methadone at home, urgent advise needed

I'm away from home tonight and for the first time forgot my methadone. I take 5mg every night. What might happen to me if I miss 1 dose of 5mg Tonight?!?! If...

I'm away from home tonight and for the first time forgot my methadone. I take 5m...

Rayme

•7 days ago

33 Replies

Awful repeated behaviours of hospital staff

Sadly once again I have had to go into hospital, Leighton Hospital in Crewe in England. I have lung damage caused by 3 severe bouts of Covid infections, two...

Sadly once again I have had to go into hospital, Leighton Hospital in Crewe in E...

HilsK

•5 days ago

27 Replies

Stabilising buprenorphine dose

After months escaping from DA augmentation and with the help & support of many in this community I reached a period in late 2023 when I started on...

After months escaping from DA augmentation and with the help & support of many ...

davchar23

•1 month ago

72 Replies

Leg stiffness when reducing Pregabalin

Hi all! I am reducing from 200 mg to 100 mg as the side effects are horrendous. Now getting back to 4 hours sleep and leg stiffness in the morning. Does...

Hi all! I am reducing from 200 mg to 100 mg as the side effects are horrendous. ...

Moonwalker1967

•5 days ago

27 Replies

Buprenorphine and constipation.

Can anyone tell me how constipating Buprenorphine is please? I’ve heard a lot about the nausea it causes but not that other side effect of all morphine drugs....

Can anyone tell me how constipating Buprenorphine is please? I’ve heard a lot ab...

Ruffabug

•2 days ago

16 Replies

Leg Pain

Hello...I am wondering if any of you have experienced not just the restlessness of RLS but pain? I have been diagnosed with RLS -my mother had it- but my...

Hello...I am wondering if any of you have experienced not just the restlessness ...

jebsat

•2 days ago

15 Replies

Buprenorphine tablet's and Oramorph.

Hi all. Does anybody know whether it's safe for me to take 2 ml Oramorph at 1.30 p.m. ? I am trying to take ½ Buprenorphine at 3 p.m. when my RLS starts, then...

Hi all. Does anybody know whether it's safe for me to take 2 ml Oramorph at 1.30...

Danni54

•19 hours ago

9 Replies

RLS & Pramipexole

I'm an 81 year old active woman. I have suffered with RLS for over 10 years. Prescribed .088mg Pramipexole by my GP n just told to increase when I complain! I...

I'm an 81 year old active woman. I have suffered with RLS for over 10 years. Pre...

Maymount

•10 days ago

30 Replies

Cannabidiol (CBD)

i was wondering if anyone had tried Cannabidiol (CBD).

Brufax

•3 days ago

17 Replies

bup tablets v temgesic

Hello - I am usually prescribed pure buprenorphine 0.4 tablets - either morningside or accord brand - however this month I was given Temgesic - I assumed they...

Hello - I am usually prescribed pure buprenorphine 0.4 tablets - either mornings...

Drls

•4 days ago

17 Replies

methadone or buprenorphine

After augmentation and the horrors of withdrawal, I started on methadone in Feb this year and have titrated slowly up to 7.5 mg . I am now sleeping around 5-7...

After augmentation and the horrors of withdrawal, I started on methadone in Feb ...

Mongolia2020

•1 day ago

10 Replies

SUPPLEMENTS FOR RLS?

I AM COMING OFF OF PREGABALIN, I AM ON 200MG PRESENTLY. I WANT TO START SUPPLEMENTS AND WANT TO MAKE SURE I AM DOING THE RIGHT THING. MAGNESIUM+B6 VITAMIN...

I AM COMING OFF OF PREGABALIN, I AM ON 200MG PRESENTLY. I WANT TO START SUPPLEM...

piggytails

•15 days ago

33 Replies

How I reduced my RLS symptoms to Zero.

I have got my RLS completely under control and write this because I understand the pain and suffering. I empathize and I hope I can help. I STOPPED my rls...

I have got my RLS completely under control and write this because I understand ...

1kma

•3 days ago

15 Replies

Grateful to my Neurologist and "HealthUnlocked"!

I have had moderate/severe RLS for 14 years. Traveled the paths of Mirapex (augmented) and Ropinerole (augmented). I was recently made aware of a neurologist...

I have had moderate/severe RLS for 14 years. Traveled the paths of Mirapex (aug...

PianoRunner

•2 days ago

13 Replies

Trazodone

Hi , after trying very hard to navigate depression without drugs I have now just started Trazodone . Taking Gabapentin successfully, only mild RL . Had every...

Hi , after trying very hard to navigate depression without drugs I have now just...

Rubynessie

•17 days ago

34 Replies

Buprenorphine transition from patch to tablets

Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch...

Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been fr...

RiversW

•4 days ago

16 Replies

Full iron panel results

I've persuaded my doctor to do a blood test to determine my iron levels but I need help knowing what my levels should be. I've tried searching the site but no...

I've persuaded my doctor to do a blood test to determine my iron levels but I ne...

gobojo

•2 days ago

11 Replies

Therapulse

Is the effect of Terrapulse such that I don't have to worry about the symptoms only while it is working? Or do the symptoms subside for a while even after the...

Is the effect of Terrapulse such that I don't have to worry about the symptoms o...

Mariuni

•3 days ago

15 Replies

will it ever get better

Would love some advice/reassurance. I have had RLS for many years and took pramipexole for 14 years with mostly good control until a few months ago, when...

Would love some advice/reassurance. I have had RLS for many years and took pram...

ehr1968

•6 days ago

19 Replies

ropinorole augmentation

I have been taking ropinorole since 2017, 3 mg. I don’t know if I’m experiencing augmentation but as soon as I take it, it starts to bother me. After about 30...

I have been taking ropinorole since 2017, 3 mg. I don’t know if I’m experiencin...

Doglobwr23

•8 days ago

22 Replies

Hello and thanks for having me in this group

My name is Jane and I've suffered from acute RLS for about 4 years now. I was prescribed an evening dose of 2.5 mg Ropinerole by a neurologist here in the UK,...

My name is Jane and I've suffered from acute RLS for about 4 years now. I was p...

Chocolate123Lab

•10 days ago

24 Replies

See all posts

Write a post or ask a question

Pinned Posts

See all

Security/Privacy information for RLS-UK/EARLS community memb...

Opioids for RLS- some useful information

ADDENDUM TO MEMBERS PLEASE NOTE

Yellow Card Scheme Reporting

RLS UK CAMPAIGN FOR EDUCATION OF GPS IN THE UK

Latest poll

See all polls

Which country do you live in?

Vote

About us

Welcome to the European Alliance for Restless Legs Syndrome (EARLS) and RLS-UK forum. Learn more about us at w...

Support us!

We are 100% dependent on voluntary donations & fundraising, this means your generous contributions will help us continue to provide information & support to people living with RLS

Donate now