Severe: Dr. Peterson - On Severely Ill... - Ramsays Disease

Ramsays Disease

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Ian123 profile image
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Dr. Peterson - On Severely Ill Chronic Fatigue Syndrome Patients

simmaronresearch.com/2015/1...

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Ian123
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9 Replies
Effort profile image
Effort

follows on with

youtube.com/watch?v=bAbK8B6...

and

youtube.com/watch?v=t0jqrhJ...

Cloudedout profile image
Cloudedout

Tour de force of information.

CheshireKatz profile image
CheshireKatz

Measuring the severe because they cannot get into clinics is a problem and not funding Ron Davis researching this group makes a bigger problem. A signal was sent for other researchers when one with such a reputation was publicly refused funding.

carch520 profile image
carch520

Pacing some for later.

Bellated profile image
Bellated in reply tocarch520

Joining that club tomorrow.......

readerlist profile image
readerlist

Defining a separate spectrum of ME versus CFS as Leonard Jason suggests is deja vu all over again with how the waters were muddied with the Oxford Criteria research applied in treating ME ( CG93.3 ) a neurological illness.

rocketronnie profile image
rocketronnie in reply toreaderlist

Simplifying a complex disease boundaries is ok for researchers and useless for clinical settings that let people fall through the cracks.

Most important time for getting treatment is the first three years and very few have a diagnosis until things have gone wrong obviously later than ideal.

Taking a CFS group and treating as the same until they develop full blown ME is harmful for patients and health service budgets.

Theresa60 profile image
Theresa60

Whetted my appetite for further investigation of some antivirals that were news to me.

Jonesbones profile image
Jonesbones in reply toTheresa60

Hope in new drugs when most of what we take is off label.

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