New Funding : Suddenly a whole lot more... - Ramsays Disease

Ramsays Disease

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New Funding

Halflife profile image
21 Replies

Suddenly a whole lot more reasons CFS/ME could see funding raised from NIH sooner than Collins first called with 2016 budget set.

cortjohnson.org/forums/thre...

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Halflife profile image
Halflife
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21 Replies
Theresa60 profile image
Theresa60

Waiting with baited breath watching ripples on this side of the pond should fortune smile on your good selves. The Institute of Medicine report may yet have a greater impact on medical perception of a devastating condition for patients their families and loved ones.

Please keep us informed Halflife.

Effort profile image
Effort

Lowering AHRQ profile is not so bad from my viewpoint as an outsider considering

Agency for Health Research and Quality performed so poorly during NIH P2P on CFS that a call has been made for re assessment of the PACE trial recommendation provided as evidence in front of NIH committee members.

Chocminty profile image
Chocminty

Closer collaboration with European supporters of research projects creates opportunities for more speculative work than happens within tight confines of taking on safe projects assured of funding.

Europe collectively contributing research funding as individual member states scale down financial support a framework of collaboration and information sharing removing the competition model which scraps over safe options taking as few chances with reputation as feasible.

illiad2 profile image
illiad2 in reply toChocminty

Pan European enlightenment varies from Norways Rituximab trials across Kristina Hansen held in a secure mental unit in Denmark with most points between on the spectrum covered.

pandemic profile image
pandemic in reply toilliad2

Questioning who does what research is less important than somebody does something that takes research forwards.

carch520 profile image
carch520 in reply topandemic

Second that get on with it researchers.

Ian123 profile image
Ian123

Under one of the Institutes making progress into the tens of millions appears the limit for ambition hhs.gov/about/budget/budget... after other groups have taken a share.

Seascape profile image
Seascape

The UK’s Medical Research Council is facing a budget crunch because of the loss of tens of millions of pounds in annual revenues from the expiry of patents on medicines it helped to develop.

Budget of £771.8m in 2014 /2015 in danger as spending review targets a further £20bn

reduction in spending. Many first rate proposals are not funded as the MRC battles protection of existing budget.

Added onto cuts in the welfare state targeting the most vulnerable an improvement for symptom reduction or quality of life in the coming year has no basis in facts available.

A nation that's in the top five economies in the world treating the entire disabled community as second class citizens is morally unacceptable.

Waterman12 profile image
Waterman12 in reply toSeascape

Fifteen years outside of mainstream research funding in the USA only changed with rejection of psychosocial model until the same happens in the UK the MRC could be awash with cash and ME bio research rejected its attitude not budget thats the blocker.

rebound profile image
rebound

Asking for research money and it will be sorry £5 million spent on PACE Trials 2011 wait inline priorities are set by medical opinion at MRC.

Dunnlyn profile image
Dunnlyn

Francis Collins has an opportunity that substantial research funds will be delivered an RFA is a real signal that researchers can focus on. Show the money and science will follow as sure as day follows night.

Cloudedout profile image
Cloudedout in reply toDunnlyn

The Institute of Medicine report is centre stage in moving a mindset into mainstream a great debt will be owed for the work.

Babylon5 profile image
Babylon5

Waiting aamc.org/advocacy/washhigh/...

readerlist profile image
readerlist

CDC funding will be restored at $5.4 million when earlier proposals were for cutting CFS funding down to zero. NIH funding up by $2 billion on 2015 financial year

appropriations.senate.gov/i... NINDS is getting $1,696,139,000 in funding in 2016 and NIAID is getting $4,629,928,00.

Halflife profile image
Halflife in reply toreaderlist

Moment of truth is here cortjohnson.org/forums/thre...

KMC442 profile image
KMC442

Open Medicine Foundation move quicker than governments that want pilot study then published results all using up time.

openmedicinefoundation.org/...

Halflife profile image
Halflife in reply toKMC442

Public funding gives agility the feds should be the muscle that supports them

Halflife profile image
Halflife

Omnibus signed into law nih.gov/about-nih/who-we-ar... by the President

Ian123 profile image
Ian123 in reply toHalflife

The numbers are all promising reality will hopefully be as promising.

pandemic profile image
pandemic in reply toHalflife

Supporting quality high powered research in the USA leads this disease into a new chapter the door has opened will it open enough we are allowed inside - can hardly wait.

Cloudedout profile image
Cloudedout in reply toHalflife

A start point of $5 million is an opportunity NIH can make the most effective use of the smallest amount of funding in any medical condition.

$10 million extra in cancer research hardly noticed same amount on ME/CFS begins a new age that brings in drug companies that see a market with no drug treatments approved.

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