I will do what I can although I live some distance away...I am worried about how we will cope with the progresss of this terrible disease and want to start the wheels in motion for support. My mother has occupational and speech therapists involved so far..as well as the neurologist. I am so glad that I found this site as I was at a loss as to know which way to go? Hoping that those of you that are a bit further down the line can give me some advice as I would be most grateful??