Does anyone know how to go about starting a charitable/trust fund? I would like to start a fund (in my Mum's name) that would provide grants for pieces of equipment or funds towards major adaptations for people with PSP/CBD.
It makes me so angry that people who really need these aids may or may not get them depending on where they live. We've been very lucky - Mum has a super wheelchair, a riser recliner chair, bed raisers, a commode and a hoist all provided by our OT and we've been told that when the wheelchair no longer suits Mum it will be replaced, yet I know that people in a neighbouring borough cannot get a riser/recliner chair unless one is returned to stores - in which case it will be re-conditioned and re-issued on a "greatest need" basis.
It just doesn't seem fair!
Love Kathy x