Hello all of you kind people who replied to my post re PSP support in Torquay area.
I have taken all your comments on board, and although I have a great support network ie Marie curie, a fantastic community matron and her team, but as we all know not a lot of people, even professionals have a full insight into this complex disease except us carers who thankfully
answer most of our questions on this forum which is a godsend.
Every reply has information which has helped me ,thank you again, sorry I did not reply earlier, myself and my hubby have both had heavy colds, on the mend now!
Hubby is at the stage where he has had a peg fitted, his swallowing is very bad, lost his speech, and cannot see very well, his carer who is brilliant, takes him for a little drive each day and sits down at meadfoot beach, ( his favourite )
he is a challenge most times everything has to be done now, as most of you agree, and yes it leaves you washed out, but hey ho he is still in there somewhere and we do have a laugh sometimes, evev in our darkest of moments, as he had a great sense of cheekiness when he was well.
All good wishes, luv and thank you once again.