have to pay for carers??

[emazros]

is this correct? my mum cares for my stepdad 24hrs she contacted social services to enquire 1 day a wk for herself a break they have written back saying she willl have to pay for help!! i cant believe this!!!!

fuming.com!!!

[superman888]

I think social services means test allot of services, thus end up charging for things. But others will know more because we do not bother with social services. I think they try to make everyone go through social services rather than the NHS inorder to charge you for services. I think some people with PSP try and get NHS Continuing Care, whereby the NHS pays for your health needs, but from what I have read many have to try numerous times because it is very difficult to get.

[superman888 in reply to superman888]

Here's the link:

nhs.uk/chq/Pages/2392.aspx?...

[staceystella in reply to superman888]

Hi there, yes it's means tested. My mum managed to get the maximum of 8 hours per week but split it over two days & if you want anymore it's about £18 per hour but they are only classed as sitters and make sure they don't have any accidents.

Hope this helps x

[anne-cliff]

make sure your mum claims higher rate attendants allowance- not means tested.

[jillannf6]

lhi

can your mum get the DLA[ if under 65 but soon o be replaced

i got it and it almos tpays for my carer - nto quite and i get help form SOCIAL SERVICE S thro direct payjments

lol Jill

[superman888]

The direct payments option of social services may be the best option that jillannf6 mentions.

Here's the link:

direct.gov.uk/en/moneytaxan...

[emazros]

the social services came to assess peter he has had psp for 8 yrs now they have advised they wont pay for help for carers so my mum cant have a break unless she pays out of her own pocket!

[Hidden in reply to emazros]

Have you tried Crossroads? They come and sit for no payment and it gives you a chance to have a break. Before Mum got PSP she nursed my Dad for 13 years through strokes and vascular dementia and Crossroads came about 3 times a week to give her an hour or 2 to do things like get her hair done,have a coffee with them or neighbours nip up the shops or go and lay down for a while.

[hazelb]

Hi....our GP & also the District nurses referred us to the local Palliative Care team & also to the Marie Curie night service when they decided I needed a break. I then had a sitter for Frank one afternoon a week from the Palliative team & a night sit twice a week from Marie Curie. This allowed me to go upstairs to sleep. They also organised day care one day a week for 6wks at the local Hospice. None of this cost us a penny...it was all on NHS. We did however have to pay for his regular Carers as this was means tested. We were in the process of applying for Continuing health care when Frank passed away.

I know we were lucky that we had a really good GP & support team which not everyone has but it's worth a try.

Take care & try to keep smiling.

Love Hazel B xx

[emazros]

thanku hazel, its so fustrating that they refused to help they dont have a clue! xx

[Jay29]

Hi there,

I use a charity called Crossroads but am not sure if they operate in your area. They will provide a free 3 hrs a week sitting service. It might take a while to get registered with them and there is usually a waiting list but it's worth the wait.

J.

[clara]

Please search for the excellent links regarding NHS continuing care on this site, and please PUSH for it - it isnt impossible to get - I care for my mum and thedistrict nurses and community hospice nurse managed to get it for my mum a few months ago - it means a HUGE difference - carers 4 times a day paid for and 6 weeks of respite in a care home a year -

EMAZROS - fight for this, get in touch with GP, get a referral to local hospice, get anyone you can on board and shout for help. Keep shouting until someone listens ... it will happen and its worth all the effort. keep in touch here and let us know how things are.

Clara

[springbank]

My lates husband's social work manager arranged the payment for a Crossroads carer for two part days per week. We did not have to pay. The carers were to allow me respite hours and get shopping, but I ended up having to use the time to visit my mum who was in hospital with a broken leg. The time was increased to allow for the time to travel also a few extra hours as needed. I just had to phone to let the SWM know so she could sign them off. The cares gave my husband his lunch and would wash and change him if necessary if he could not use the urine bottle in time. They were excellent and I felt he was in capable hands in my absence