Is anyone in the devanutide trial having any material benefits ?

[Wesley]

[CateT]

So hard to tell as PSP is so individual. I did think that my mother has stayed relatively stable for the past year and has seemed to decline slower than other people I had read about. But she has still declined and at the moment, is quite ill.

[judy1962 in reply to CateT]

My husband did relatively well for one year but stil progressed. His decline was rapid once taken off

[denmob]

My husband has just finished the trial. Unfortunately there doesn't appear to have been any benefit BUT he might have been on the placebo. We must wait until the end of the year for feedback from Allon

[CateT]

My mum has had such a decline in the 2 months she has been off the trial that I just can't help wondering if it may have been the drug holding her steady for the last year. It could be coincidence though obviously.