Hi all
I dont know if any body else suffers with dry skin but i get
it all over my face and sometimes on my hands and arms
its only happen since ive had cbd i wonded if it could be
caused by the meds they put me on or is it part of the disease
has any body had this problem,
thank you
Hi Ray,
Have you tried aqueous cream? It works the same as E45 cream but it is much cheaper. I think a large tub (500g) is about £3. You can get it from Boots/Tesco. It works wonders!
My dad suffers from a lot of dry skin problems too.
Mum gets dry skin too, particularly behind her ears and on her scalp. Sis washes her hair with baby shampoo which helps a little.
hi hmfsli,
i get the dry skin on my scalp behind my ears, in my ears
and on my face mostly thanks for the info,
hi ray
yes i have dry skin on my face *legs and hands - thought it might b hhe BP
tablets i take (another problem caused by the PSP) i used toj have v ;low BP then it went v high 4 no apparemt reason
but i think it si the psp
and *rosacea - spots -on my face too
jillx
hi jillann,
hope your keeping well i think the dry skin must be
caused by the psp/cbd if not the tablets that we stuff
down our throats each and every day , thanks for the
reply
ray xx
Hi Ray
The dry skin is part of psp/cbd was told by my husbands neurologist. I used to wash him with a soap free liquid wash with sorbelene in it helped a lot.
Take care Christine-Anne
hi christine-anne,
hope your keeping well my neurologist never told
me anything about dry skin ive got to see him in two
weeks time so i will have words thanks for the info
take care
ray
Hi Ray,
There's also a range of products called Phyto (shampoo) which again you can buy in Boots. It's a bit expensive but if you have dry skin on your scalp, Phyto is really good. One small bottle costs about £10-£15 but it soothes the scalp, so worth the additional cost.
Faiza
Hi Ray,
Because you have a long term condition you should get free prescriptions. If you do your GP should be able to prescribe the aqueus cream and a medicated shampoo. If you are not currently receiving free prescriptions it might be worth looking into:
nhs.uk/nhsengland/Healthcos...
Kathy x
hi kathy,
hope your keeping well, yes i do get free prescriptions
because i get income support, thanks very much for
the info and the link,
take care
ray x
Hi Ray - Eucerin cream in the tub, available over the counter, very heavy but helped my Mom - as time went on she would unknowingly fidget with the dry skin so keeping it in check is important. Good luck with all...Kathy
hi kathy,
thanks for the reply i find the dry skin drives me round the
bend some times it itches like hell, i even get it on my back
side so i fidget quite a bit, thanks for takeing the time to
let me know about this take care,
ray
Hi Friends,
I use Alovera products which i get in Holland and Barrett, and health stores or chemists. These are over the counter so sometimes there are offers and i stock up. Mums skin is like a baby all over i put the gel from top to toe...
I also use Johnson's lotions and also and comb them through her hair. Mum looks better that me... while some oils are good i worry about her touching the oil and then maybe it would go in her eyes or mouth. so whats good for a baby is great for a nana... Valerie xxx
hi valerie,
Thanks for the info ive been told that Alovera products are very
good products, as you say johnsons lotions are good enough
for babys so they should be good enough for me as well take
care and look after your self,
ray xx
Hi Ray
My husband has cbd and also has a problem with dry skin in his ears and on his head. The skin splits and bleeds especially at night. What meds are you on for CBD? I wonder if the skin thins as a result of the disease but would be interested to know whether you are on the same meds as him. He thinks it could be caused by Citalopram which he takes to lift his mood. We have found a good cream let me know if you want details
Linney
Hi linney,
Nice to meet you linney the meds i take are celecoxib for arthritis which
i have in my wrist shoulder and neck, solifenacin for over active bladder,
Co-careldopa (sinemet 12.5 mg) and Ropinirole a lot of the creams that
the gps give you now contain steroids which thins the skin any way, i dont
take any meds for my mood swings i have holistic therapy which works
wonders it destresses you it stops mood swings its nearly stopped my
tremor in my right arm and it keeps me in a positive frame of mind, the
therapy i have is called Emotional Freedom Technique and i see a great
lady therapist called karen who treats me with the utmost respect ,if you
dont mind me asking when was your husband diagnosed with cbd i was
49 when i was diagnosed which was 4 years ago, i would be very greatfull
if you could let the details of the cream, And if you ever need some one to
talk to im allways here take care,
ray x
Hi Ray
My husband was also 49 when he was diagnosed and was told he would only survive for 2 years, however, that was 10 years ago now and he is still going strong. He has kept positive and he got a job as a projectionist at the local small cinema and he does voluntary work at the local furniture scheme. I think these things have certainly helped him. He takes aricept for the dementia part of the cbd as well as the anti-depressant. I feel he was pressured into taking that and now can't get off it. He also takes a sleeping tablet to ease the agitation he has at night. The CBD has affected his left side and therefore he struggles to walk and was in a wheelchair at one point but then joined a slimming club and shed 3 stone and now although he gets weary walking he doesn't use the wheelchair any more. The cream is called Infinite Aloe and is obtainable from ebay (cheapest) by typing "new infinite aloe".
Linney
hi linney,
nice to here from you when i was diagnosed they told me i would
probley last about 15 years but i will wait and see, glad your husband
can still work i was told to stop work by the neurologist because of my
balance problems and dizzy spells, i go for a short walk most days but
get very tired i am still allowed to drive at the moment but that will probley
change soon i have a adapted mobility car so i have a bit of independence
the cbd has affected my right side so i cant write unless i use the laptop
which i would be lost without, staying positive is the best way to fight
this diseases it no good mowping about worring about whats going
to happen i dont want to take anti-depressant thats why i have holistic
therapy every tuesday it works for me i sleep quit well at nights at the
moment i think thats down to the therapy as well i know the cbd is getting
worse but i will find out when i see the neurologist in a couple of weeks
you take care and give my best to your husband
ray xx
My husband suffers from dry skin. I went on a carers course with the St Johns Ambulance and at a meeting a company were giving sample to a gel and shampoo called double base I have now managed to get this from our Dr on perscription. everything that could be bought over the counter we have tried, I have spent a fortune but this one seems to work, but I have to be honest we get it under control and then it breaks out again.
hi shelagh,
thanks for the info i will ask my doctor to give me some, i put cream
on mine and it clears up then a couple of days later its back again,
so i think im fighting a looseing battle.
Hi Ray
I cream my husband down twice a day morning and before he goes to bed at night,its ongoing as miss once and we seem to be back to square one. The double base gel comes in 500gm pump action tubs we use about one a month.
hi shelagh,
thanks for the reply i will get some gell
and give it a go you take care.
ray
Keeping the shirts dry 
Conveen coming of and causing sore skin
Panic Attack
