The last few weeks has seen more dear husband slip further into the grips of psp. His swallowing, coughing and chewing are all becoming more and more difficult for him. We have the help of a speech therapist, who is very good with my husband. But characteristic of psp, my husband will not/is unable to follow the instructions, even with constant reminders. His palsy gaze has worsened to the point he has little eye movement, so anything he needs to be able to see we raise up to his level of gaze. This has particularly helped with his eating. Not the choking sadly. I could continue with the list, but it is too disheartening.
Last week he fell over the open door of the dishwasher and wrote the dishwasher off. This is just one more item in a whole load of household items that have some from the results of psp!
Sadly, last night he fell just before going to bed and cut his nose and mouth quite badly. Instead of calling for help he decided to get himself up off the floor and upstairs. I found him on the floor of the bedroom having fallen again. Once I had cleaned him up and got him to bed, I then spent the next two hours cleaning the walls, carpets, stairs and the bedroom floor of the resulting mess. It feels very lonely at night when these things happen. Thank goodness it is a beautiful sunny morning and the birds outside are full of song. Life is good and it would be even better if we didn't have psp in this world.
Our daughter is running the London marathon next weekend for the PSPA and for her father, who ran in one of the first London marathons in the 1980's.
May all of you out there continue to have the strength and will to carry on with the battle.
With love Peter3.