End of PSP era.: A couple of weeks ago my... - PSP Association

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End of PSP era.

jamescrra profile image
jamescrra
โ€ข16 Replies

A couple of weeks ago my father passed, putting an end to a 5 year journey that impacted him mostly but the family too. He is resting now and his final moments were quick and peaceful.

On the good side (trying to see some good in this disease), we learned so much during this experience, how to cope and navigate through emotions, hardship, overcome difficult moments were everything is despair and try and help your loved ones trying to remain yourself strong. Learn that is impossible to control everything, let things happen and adapt to a new reality almost every week.

I would like to say Thank You! to this forum, even if I was not that participative I look often for answers and experiences from those who walked this path before us and this has been invaluable. Thank you very much!.

Father, rest in peace, you gave us all. ๐Ÿฆ†

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jamescrra profile image
jamescrra
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16 Replies
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Bergenser profile image
Bergenser

Dear jamescrra

Iโ€™m sorry to hear of your loss ๐Ÿ’œ. You summarise so well the strategies that we all need to learn to be able to care for and support our PSP warriors. Iโ€™m sure your father was incredibly proud of you for giving your love and support and finding the positives in this difficult journey. Wishing peace for your dad and comfort for you and the rest of the family. ๐ŸŒป๐Ÿซ‚

Kelmisty profile image
Kelmisty

Sorry for your loss, x

Sharsuk profile image
Sharsuk

Dear jamescrra

My condolences to you and family. Appreciate your positivity in the midst of grief.

Leosta profile image
Leosta

My sincere condolences to you and your family. ๐Ÿ’Ÿ

DSCN66 profile image
DSCN66

Just..tragic...

Bertieandpiper profile image
Bertieandpiper

Dear Jamescrra

Wishing your Father peace. To you and your family my condolences ๐Ÿ’œ

DebHep profile image
DebHep

A poignant post and a good summary of life with PSP. So sorry for the loss of your father but hope you can find more time for yourself now. โค๏ธ

messier profile image
messier

May you all now be at peace.

Diggerandsam profile image
Diggerandsam

God bless you and your family

Zerachiel profile image
Zerachiel

So sorry for your loss,

"Learn that is impossible to control everything, let things happen and adapt to a new reality almost every week."

... is the hardest part of this journey ๐Ÿซ‚

pspchronicles profile image
pspchronicles

So very for your loss, James๐Ÿ™๐Ÿ™

Independenceday profile image
Independenceday

So sorry for your loss, my dad passed from PSP in September, they are know pain free, sending hugs ๐Ÿค—

Milocorn1 profile image
Milocorn1

So sorry, sending love and hugs x

Husbandof profile image
Husbandof

sorry

Richard33 profile image
Richard33

James

Those are fine words as it is very hard to find anything positive about watching someone you love dying from this disease. Thank you and all sympathy to you and your family.

Richard

Harshacceptance profile image
Harshacceptance

So sad for your loss, there is a lot of wisdom in your words.

My grief for my father is less than his suffering . Itโ€™s a truly dreadful disease and I hope all can live with a little peace ๐Ÿ™

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