Has anyone heard, tried this new treatment. Do we know if it is available:
AZP2006 Treatment: Has anyone heard, tried... - PSP Association
AZP2006 Treatment
Thank you for sharing, I hadn't hear of this trial before. Any potentially disease modifying treatment is very interesting and hopeful. Given the open label extension in France, I will definitely ask about this at our next clinic visit her in the UK. 🌻🌻🌻
Dear DaniSS,
we tried to acess the first trials of AZP2006 back in 2021... not easy at all... even though we were based in France (which is a necessity to participate in such trials), my wife didn't meet the necessary inclusion criteria...
It is important to know, that such trials require early stage disease patients else the trial doesn't give an accurate enough result of trial which then prevents science advancing...
My wife and I put a little too much hope in these trials... Its fundamental to try and participate as it realy helps science advance at the same time that such trials, even if they do provide some benefit, they won't become an approved drug untill years later... Science is advancing and science does need people like us (patients and cargivers), but its going to be long before a cure come up... just keep it in mind...