PSP Treatment Satisfaction: Hello everyone... - PSP Association

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PSP Treatment Satisfaction

ashleyn97 profile image
11 Replies

Hello everyone,

I'm a student at the University of Florida conducting research on the treatment of neurological conditions. My team and I created a survey to better understand patients’ and caregivers’ experiences and satisfaction with treatment. The survey takes about 5-10 minutes to complete and can be previewed here:

ufl.qualtrics.com/jfe/form/...

If surveys are not allowed in this group, I will delete this post. Thank you for your time!

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ashleyn97 profile image
ashleyn97
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11 Replies
Kevin_1 profile image
Kevin_1

They are most allowed... Thank you for doing this research.

Best

Kevin

ashleyn97 profile image
ashleyn97 in reply toKevin_1

Great, thank you for letting me know!

taihde profile image
taihde

Just wondering why CBD (corticobasal.degeneration) was not included. We seem to be the.forgotten disease. Kicked me right out.

ashleyn97 profile image
ashleyn97 in reply totaihde

Let me contact the head team member and get it added in. We're doing research for a specific Neurological Insitute, and it may not be a condition they specialize in. I'm sorry about that and will keep you updated, we don't want to exclude anyone!

Kevin_1 profile image
Kevin_1

Hi ashleyn97

Done your survey and had a chuckle.

Page 1... "Caretaker"?

In the UK that is someone who looks after buildings. Here 'Carers' look after people.

Just giving you the heads up.

Best wished

Kevin

ashleyn97 profile image
ashleyn97 in reply toKevin_1

Hi Kevin!

Haha oops, thanks for the heads up! We hadn't thought about the vernacular with that word choice.

Willow_rob profile image
Willow_rob

There appears to be a glitch in the survey relating to treatment centres which has automatically filled in our preferences in numerical order. Sorry

ashleyn97 profile image
ashleyn97 in reply toWillow_rob

Thank you for letting me know. I will check that out.

Cade08 profile image
Cade08

I wish you well with your research. I filled out the questionnaire although I’m only a caregiver, or maybe I should say carer. My husband was in a clinical study at USF, but unfortunately he passed away before the end of the study.

ashleyn97 profile image
ashleyn97 in reply toCade08

I'm so sorry to hear about your husband. Thank you for participating on his behalf.

sonikaKharb profile image
sonikaKharb

Done

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