Increased Tremors

[Licquoricelover]

The tremors in my husbands right arm are becoming more frequent and whilst I try to stop the shaking by placing my hand on his arm they start again which is causing him some discomfort. I’ve tried placing a pillow underneath his arm and he is taking co-caredopla but that doesn’t seem to be making any difference. Does anyone have any suggestions to try and alleviate the symptoms. I am contacting our GP but thought I would check on here as well.

[David750]

Hi licquoricelover, I have heard a report of this before with PSP, tremors appearing and disappearing. Professional medical intervention had no effect. These tremors can be painful which is very troubling for you the carer not being able to effect a solution. Contact your Neurologist for advice rather than a GP.

[LuisRodicioRodicio]

Hi Licquorricelover!

These are our experiences:

A low level of calcium or the incorrect level of electrolytes in the blood can cause tremors. In our case, to avoid these kind of problems, we take three additional measures in the diet:

1) In the daily diet we include in the breakfast a quantity of fresh cheese combining with a small quantity of citrus fruits (orange, lemon, strawberries, etc.) and in the meals some egg yolk or fatty fish. And just as important as the incorporation of these kind of foods, whenever the circumstances arise, we expose the patient to the sun discovering legs and arms. The idea is to favor the presence of Calcium in the diet as well as favor the generation of vitamin D.

2) Isotonic drinks are interesting to help maintain blood electrolytes at the correct level.

3) We base the meal programming on the Mediterranean diet, favoring the presence of fruit, vegetables and legumes without forgetting the presence of meat as a source of vitamin B12.

Hug and luck.

Luis

[Sun-flowerwearer]

Hi liquorice Lover

I am sorry to hear how much the tremoring is concerning you. I cared for my husband so can only speak from observation. His right arm would tremor often. I thought it was possibly linked to needing something or stress but overtime it just did its own thing and he could not control it. He said it wasn’t painful. I don’t know of any drugs that help alleviate the symptoms and as time went on the tremor became more frequent… mostly only the one arm though. My husband also took co cardolopa initially but stopped taking it after a few months as not having any positive effect so dont think that made any difference to the tremor as it was present throughout his illness.

[Richard33]

Licquoricelover,

Ruth has spasms (myoclonic jerks I think) at night time. She has been prescribed Baclofen (which made her too dozy) and Gabapentin (which seems better) to control them. So it may be worth asking if these drugs would help.

Richard 🙂

[Bergenser]

Hi Licquoricelover,I don't have answers and I'm equally interested in what others have experienced. My husband has tremors and I feel like there are multiple types.

Sometimes he will grab his own hand (or mine) to stop it shaking, sometimes it also seems like he is actively moving the hand repeatedly - while awake or asleep. Sometimes - particularly with eyes closed - the movement is more twitchy or jerky, hence it seems like a different phenomenon.

Originally he had very slight tremors if he tried to hold his hands still. Co-careldopa "switched off" the tremors, and when they reappeared that would be an indication that the next dose was due.

Now he sometimes has very strong tremors when using his hands e.g. trying to drink from a glass. A few drinks have gone flying through the room. This seemed to get worse when he was stepping down Co-careldopa so I was uncertain whether it was the original symptom reappearing, or if it was a separate withdrawal symptom. It seems a bit better now, so I believe withdrawal was part of the explanation.

We've had brief episodes of bigger tremors (arms and legs rather than just hands). So - different or the same? The bigger tremors feel more like altered consciousness/ bordering on seizures. I'm very uncertain about this as there doesn't seem to be anything I can do to help.

Beyond spilling his drinks, he doesn't seem too upset by the tremors, so I've been reluctant to ask for any medication - this might change.

Very keen to hear if others experience is different.

🌻🤗

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