Our Story ….& why we’re fundraising for PSPA - PSP Association

PSP Association

9,729 members11,605 posts

Our Story ….& why we’re fundraising for PSPA

Bertieandpiper profile image
4 Replies

Hello

My daughter Alice has the privilege of being awarded a 2025 London Marathon charity place by PSPA. My husband was diagnosed with PSP two years ago following two misdiagnoses, so this cause is very dear to us as a family. Like most of us, we knew nothing of this awful disease, however we were amazed to find out how PSPA work tirelessly to raise awareness of PSP and support those suffering with the disease alongside their carers and families.

For Alice, running the marathon is one way to show our appreciation by helping to raise funds to further invaluable research.

We recognise that everyone has many choices when it comes to donating, probably including other PSPA events, but we would be grateful if you could take a moment to read and share the following link. If you would like to help to make a positive impact by donating we would be enormously grateful.

2025tcslondonmarathon.enthu...

Thank you

Lynn and Alice

Written by
Bertieandpiper profile image
Bertieandpiper
To view profiles and participate in discussions please or .
4 Replies
Jen295 profile image
Jen295

We are on the same journey and last year our children ran the London Landmarks Half Marathon for PSPA. The PSPA team were great they sent them running shirts and were there to cheer them on as they ran around.

Good luck to Alice and I'll be going on to her donation page . Xx

Bertieandpiper profile image
Bertieandpiper in reply toJen295

Hi

Thank you so much. I hope I can get to cheer her on.

Best wishes to you all xx

Richard33 profile image
Richard33

Lynn and Alice,

That is great. PSPA really needs good people like Alice.....Good luck!

Richard 🙂

Bertieandpiper profile image
Bertieandpiper in reply toRichard33

Thank you Richard

Not what you're looking for?

You may also like...

The story behind my daughters Marathon for PSP.

My daughter, Becca, is running in the London Marathon for PSP next Sunday. My father,...
Daria profile image

Good news and good people.

I hope this post will help give a little cheer to you all. I always try to look for the Ray of...
hellebore profile image

PSP Assoc. Request for our help

Hi folks this is being emailed out by the PSP Association. Just in case some, like me, never got...
Kevin_1 profile image

Things to do for PSP – sing a PSP country song (badly!)

A bit of fun for a good cause. You have to watch the video - sorry!...
Richard33 profile image

Do I have PSP? What else?

I live in India where the awareness of PSP is very low. With the exception of (1) early falls and...
dethiraj profile image

Moderation team

HelenPSPA profile image
HelenPSPAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.