Although this is my first post, I have regularly used the forum as a source of information & taken comfort that we as a family were not alone.
My beautiful & fiercely independent mum died this week after a short battle from aspiration pneumonia caused by PSP. Mum was diagnosed only 1.5 years ago, although symptoms were prevalent for much longer and early signs apparent from 2019.
One of the best purchases we made was a RotaBed - operabeds.com/collections/r...
As a thank you to this community, I would love to gift the bed to someone with PSP or CBD for a donation of their choosing to the PSPA. If you are interested or would like more information then please contact me. I will caveat that the recipient would need to arrange collection & transport (we purchased through Opera Beds who may be willing to do this for a charge). The bed is currently located just outside Glasgow.
I wish everyone well on their own family’s PSP journey. It really has been an emotional rollercoaster but it has been an absolute honour to care for my mum. I just hope & know I did her proud.