Tim Brown's 3rd PSP Chronicles Beyond ..

[AliBee1]

I was going to mail Tim privately but have decided to post openly to 'daddyt' as what I want to say is relevant to us all. I bought Tim's 3rd book in Kindle format but have now ordered it in paperback format too, as I was missing being able to highlight so many of the text that Tim uses, as I did in his previous books. When I reviewed the 2nd book I said that it really should be a 'must' read for all of us involved with PSP or CBD but this time I want to say that it should be a 'must' read for all the health professionals that we come across in the journey through this disease too especially as in this book Tim also talks about his dementia element of FTD. Every person on this journey is unique but many suffer from some form of dementia too. My husband had vascular dementia as well. He loved Tim's description of his 'tree trunk legs' and used it frequently when he was asked about his mobility. I now have a friend with MSA [Multiple System Atrophy] who's legs are so heavy and stubborn now and which I am finding increasingly difficult to lift into my car once we have her bottom in. She always laughs when I mention lifting tree trunks and it eases the situation. Tim is so brave to chronicle his true thoughts and feelings but his humour is contagious and is so essential as part of our lives. Humour kept me from giving up at times. I now have a lot to do with various Health Professional and Social Worker teams as I have met them through the Carers Support Group that I run. They learn so much from first hand experience but I can also use Tim's words to help them to understand how it is for the person with the problem. I lost my husband Chris when I was 47 and I started to write poetry about bereavement, which is how I met Nigel, as his wife had died and who is the reason that I am on this forum. He died in 2019. On the front page of my first bereavement booklet I used words by Mary Stott [Forgetting's no excuse 1975] 'One of the things that I have learnt through all this, is that we who have words and can articulate grief for those who have not, and that to have grief spelt out, it's pattern charted, is something that we all obscurely need ....'. By chronicling his journey Tim is doing this for us all and I just want to say a huge 'thank you' to him for all the time and effort he has put into writing on our behalf. Love to you all. AliBee

[LuisRodicioRodicio]

A huge "Thank you" and a big hug for "daddyt-Tim" and "AliBee1".

Luis

[Leosta]

Thank you for posting openly. Raising awareness of PSP is so important and hopefully many may decide to read Tim's books. You're right, too, that health professionals could benefit greatly from them. Hats off to you and Tim. 👋

[Runner333]

Thank you for all of us psp people. Best review ever!

[daddyt]

Awww shucks😊

Tim x

[Richard33]

AliBee,

Thank you for that fine post. We are also all very grateful for your input and poetry (of course) for this forum.

Richard 🙂

[Goodact]

My heart goes out to all of you who contribute so much it makes such a difference late at night I would read and hope and plan but nothing beats psp your help tour words were hope in the darkness I thank you all so much