The last stage was brutal. her husband and kids were there with her for this journey and we try and console ourselves that maybe she didn't feel the pain we could see. Maybe that's an illusion.
For a super active person, her 10 year journey with this was hard on her. She handled it with grace.
I thank this forum for all the help and just being there, knowing we were not alone alone, helped.
Blessings to those who are patients and their caregivers.
Written by
momme
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I am sorry for you loss, and that you and your family had such a difficult time. PSP is brutal and now your mother is at rest and at peace. I hope you and the whole family are able to find comfort and happy memories as the shock fades and her life pre-PSP comes back into focus. Love and hugs and may her star shine bright 💜🫂 🌟
I'm a new member t the forum, my Dad was diagnosed last year. Its such a terrible condition with no treatment! Please accept my condoliences to yourself and the family at this truly sad chapter. In the words of the song Dancing In The Sky" I wish this for you Mum " I hope you're dancing in the sky And I hope you're singing in the angel's choir And I hope the angels know what they have I'll bet it's so nice up in Heaven since you arrived". If you have not heard the song, take a moment to yorself and look it up its Danni & Lizzi. We lost a dear friend a few yrs ago and I came across the song and my friend played it at his funeral as he loved to dance. In my heart and thoughts at this sad time x
Thank you Dance1955. Its only now that I can bring myself to come and check these messages. I remind myself everyday- that she is not in pain. The trauma of seeing the last few weeks still lingers. It is indeed one of the worst things I've seen in my life.
My sincere condolences to you and your family. Try and focus on her amazing life and not the end you witnessed. She's now free of this awful disease. 🙏
Thank you for your condolences. I am only coming back now to check on this board. It is a cruel, cruel illness. And I really hope we make progress into finding more about the disease and its cure.
I’m so sorry for your loss. It’s a hard process but sounds like your Mom had a lot of support and that’s a beautiful thing. Sending love & light as you journey forward 💕
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