My mom, who had PsP, is now a star in the sky.
The last stage was brutal. her husband and kids were there with her for this journey and we try and console ourselves that maybe she didn't feel the pain we could see. Maybe that's an illusion.
For a super active person, her 10 year journey with this was hard on her. She handled it with grace.
I thank this forum for all the help and just being there, knowing we were not alone alone, helped.
Blessings to those who are patients and their caregivers.