I got an email yesterday from a friend of mine who I met through work about 20 years ago. We periodically email each other. She inquired how Larry and I were doing. I filled her in on Larry’s PSP. What it is, his life expectancy and that I have been his care giver for a little more than three years now.
I knew she would understand the care giver part. Her middle child was born with a genetic disease called Familial Dysautonomia. She and her husband both had the gene for this. It is a recessive gene. Each parent has to have it for the child to be born with the disease.
When her daughter was born they were told her life expectancy was 6 years. Whenever she writes I am hesitant to ask how her daughter is doing. I fear the she died answer. Asked yesterday. Her daughter is till doing OK. She turned 31! My friend has been her chief care giver for the last 31 years.
Told her she was the ultimate care giver. She has kept her daughter alive through her own initiative for 31 years.