Falls : Hi I have had several minor falls... - PSP Association

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Falls

Jazz10 profile image
18 Replies

Hi

I have had several minor falls! Unfortunately on 6th August I fell backwards from the very top stair in the house! I have broken 4 ribs and cracked my T10 vertebrae! I spent 12 days in the Major Trauma ward in hospital! I’ve lost all confidence in moving independently! Does anyone have any ideas as to how best get my confidence back.

Thanks in anticipation

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Jazz10 profile image
Jazz10
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18 Replies

Oh l am so sorry this has happened to you. Take it slow... and easy. I have fallen backwards and it is such a helpless situation... wish l had words of wisdom to share about confidence building but l am still working on that one myself. My heart goes out to you. SendingHugs... Granni B

Jazz10 profile image
Jazz10 in reply to

Thanks for your kind thoughts

Boman profile image
Boman

I am sorry to read this; it’s really hard and terrifying too. It’s happened to me, but luckily I didn’t break anything. Except my confidence. A good physio suggested to always use a walking frame, the grab rails and when changing positions take it slowly. In other words: have equipment to help. I still fall, but less and usually manage to break my fall somewhat. The other part for me has been acceptance. Which was hard and takes time. Meditation and mindfulness help. To accept whatever phase of the illness I find myself in, accept the symptoms and inabilities. And express gratitude for what I still can do. It’s calming and positive.

I hope you’ll get confidence back and this helps a little.

Jazz10 profile image
Jazz10 in reply to Boman

Thanks for your help and advice! Unfortunately I have no use of my left arm so can’t use a walking frame! I do have a quad stick which I am trying to use more

Traveller45 profile image
Traveller45

From a carers perspective those falls are terrible. My husband was falling continually, ending in ambulance trips and so much blood. I can’t let my him move around by himself anymore because the idea of him injuring himself again or even dying as a result of a fall is unbearable. I feel as though I’ve taken his freedom away but he is so unsteady. He uses a walking frame and doesn’t fight it which I’m grateful for.

Jazz10 profile image
Jazz10 in reply to Traveller45

Thanks for your help, it is appreciated to know that I’m not alone in this

AJK2001 profile image
AJK2001

So sorry to hear. Have you a physio working with you to help you get your confidence back? Have you a stair rail and other grab rails about the house - they do help. Ask for an OT assessment. Do use your quad stick - walking aids tend to encourage you to lean forward a little, thereby making it harder to fall backwards. It is possible to buy pants which have extra padding to protect your hips if you fall. Good luck - it is good to keep mobile, it helps with so many other things, keep going :)

Jazz10 profile image
Jazz10 in reply to AJK2001

Thanks for your help and advice

timbowPSP profile image
timbowPSP

Scary thought! It has nearly happened to me, and yes mindfulness and hang on tight are both good. Raise ur spirits a bit with the following? .... "There was a man of Birmingham and he was wondrous wise. He jumped into a gooseberry bush and scratched out both his eyes. And when saw what he had done he cried with might and main, and jumped into another bush and scratched them in again!" God rest you merry gentleman .... and best wishes - TimbowPSP

Jazz10 profile image
Jazz10 in reply to timbowPSP

That’s made me chuckle

Indiana-Girl profile image
Indiana-Girl

I am so sorry to hear you have reached this point in this insidious disease. My husband, too, has had many falls. This will, unfortunately for all who have this, just get worse. My hubby uses a walker but has reached a point where he can only manage a few steps before he transfers to a wheelchair. Even then, he is always being assisted by me or his caregiver. If he is not being assisted, he will always fall. You should plan for this eventuality by getting a really great gait belt ( they are not all the same). My sweetie has one with handles and the medical personnel who have been called to assist when he falls love his belt as it is very helpful to them. Also you should start looking for a comfortable wheelchair as you will need it in the not too distant future. I don’t know how long you have been battling this disease but we have been in the fight for about 4 1/2 years now and the decline in my hubby has been breathtaking. You are in our prayers.

Jazz10 profile image
Jazz10 in reply to Indiana-Girl

Thanks! I’ve had it for 4 years and it’s really affecting my left side, I have no use of my left arm! We have just started having Carers to get me out of bed, washed and dressed and they put me to bed at night!

Banta123 profile image
Banta123 in reply to Indiana-Girl

Please could you advise on a gait belt for my dad.

Thank you

Indiana-Girl profile image
Indiana-Girl in reply to Banta123

From Amazon.: Vive Transfer Belt with Handles - Medical Nursing Safety Gait Patient Assist - Bariatric, Pediatric, Elderly, Handicap, Occupational & Physical Therapy - PT Gate Strap Quick Release Metal Buckle

It is a great belt with horizontal and vertical handles.

They are a little pricey but you can put in a chair rail system to help getting up and down stairs. What I noticed with a lot of people they forget to breath as walking up stairs especially for some reason. Then I've had some over think the walking process which has lead to falls. But practice is maybe the best thing you can do to build your confidence back up. Best wishes

ConcernedEx profile image
ConcernedEx

Oh my heart aches for you. I remember before my ex’s diagnosis, he’d fall down the stairs.

Finally, he moved his room to first floor and just avoided that issue. Perhaps this is something you can think about??

I’m soooo sorry you’re experiencing this marker of psp.

Sending hugs.

Jazz10 profile image
Jazz10 in reply to ConcernedEx

Thanks! We’ve just finished converting the garage into a bedroom with wet room! Unfortunately it wasn’t quite ready when I had my fall. It’s made life a lot easier because I’m now too scared to use stairs

Traveller45 profile image
Traveller45

Hi a Jazz. I just read you’ve converted your garage into a bedroom. We have stairs with a chairlift but movement for my husband is becoming very difficult. Unfortunately he’s had two falls today. I can’t even make him safe by being right beside him! He’s ok but he doesn’t bounce back very well. I’ve been having conversations with my daughters about building a room in the garage with a wet area. I can’t imagine how it will work. It was really nice to read of your conversion.

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